help i cant find you at freewebs.com/cflife 9they had lot cflife...sites), you may need to stamp your site w/ BECKY or L NAME or HOBBY !!! GD BLESS YOUR EVERY...
The cystic fibrosis pen pal club still has there store up and running and we have new stuff at are store as well please come and check are store out . if you...
Hello everyone, I am in need of some help for a friend, something I have had no experience with but have seen other's talk about and was hoping that someone...
Hello Cloyce, My cousin, who does not have CF, is currently on a growth hormone. She started it at age 15 because she had not started her monthly cycle and was...
My name is Gina Mackintosh and I am a Child Life graduate student at Mills College in Oakland, CA. I am presently engaging in a research study about...
Hi Rachael, Thank you so much for sharing your cousin's experience on growth hormones.....believe me, every little bit of information will help her to make her...
It's my pleasure. I spoke to my cousin this morning about her experiences and she said that if you have any questions she will be happy to answer. :) ~ rach ...
Hi Gina, My daughter had already had her tx at age 16 at Children's in Los Angeles, but she did still go to Children's in Madera CF clinic when L A needed...
Dear Cloyce, I am a member of the CF support group, in much the same way you are. My son Tristan is 18mo. old w/ CF. From the day of our son's diagnosis, my...
Hello, I found this group in hopes of some answers. My daughter was born Dec.27,2006. Her heel stick test has screened a positive result for one CF mutation....
Yes there is that chance that she is just a carrier. my understand is that both parents have to be carriers. I am 35yrs old and was diagnosed only 2yrs ago so...
Danielle, My advise to you is to just have the sweat test done, so you know for sure. Not all mutations of CF are the same, and many babies won't show any...
Hi Deb, It's a shame that the pulmonology dept. put you, your husband and son through all of that.....to top it off it was all for nothing! You and your...
Hi Danielle, It would be a good idea to have the sweat test done.....but since your little one is not quite a month old I would wait a few more weeks. My...
Hi, Some CFers do not show many signs, or any signs of the CF, until they are much older. Because she is so young the sweat test is not reliable. If it shows a...
I wasn't diagnosed with CF until I was 11, since there was no family history; I was diagnosed as having allegies, sinuitis, you name it. I continued to gain ...
A sweat test isn't 100% The only test that is the most accurate is the Ambry Genetic testing since I believe it screens for the most Mutations. People could...
Hi everyone, Life has been something else the past week so I¡¦m just doing a general e-mail with all topics. So I hope you don¡¦t mind, just skip over the...
Hi, I am new to this group as of today. I was diagnosed with CF after my first child was born, at the age of 31. I am lucky in the fact that obviously I have...
Hey Carol, you weren't diagnosed with cf until you were 31? Wowsers I never heard of that. My sister had cystic fibrosis and lived till she was 34 back in...
Hi Carol, Welcome to the group. :) As a CFer diagnosed as a baby, I have never experienced the salt water phenomena you are speaking of. It's very interesting....
Hi Carol, Welcome to the group! I have had this experience, but only after I've been on IV saline for awhile (like with antibiotics or in the hospital). I,...
Well so far so good as far as the vitamin water. I was wondering if maybe I was just clearing too much salt out of my body. I guess I should talk to the...
Hi, When I was diagnosed at Mass General they told me I was the oldest they had seen as far as first diagnosis. I know I am pretty lucky to not be sick like...
I am a father of a cystic fibrosis ... Expecting? Get great news right away with email Auto-Check. Try the Yahoo! Mail Beta. [Non-text portions of this message...
I am a father with a CF Child. She is 5. You can e-mail me at _theemeraldwar@..._ (mailto:theemeraldwar@...) . My name is Len. [Non-text portions of...
Thanks Carol, so yours is a mild form that's not too bad. Do you mean like diet and stuff? ... From: Carol CLIFFORD To: cysticfibrosissupport@yahoogroups.com ...
Hi Barbara-Anne, I mean the whole picture. I really don't have any major pulmonary or GI symptoms. I guess recently (11 years ago) they have found adults...
... Cystic-L has many Dads -- here's some info: Cystic-L - It's an Email Community! It's a Website! #################################################### ...
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