This has nothing to do with CF. But I hope that if there are any wahm or wahd's out there they can find this site helpful. Come visit us on the 18th to see...
Hi Friends! Sometimes u just cant predict what ur gonna find in ur mail! Just opened my mail n guess what? voip ! Have fun Guys, i think am gonna love it...
Come visit us to see what chat rooms and on-line parties are all about. ( We will be scheduling a cf chit chat night soon ) The Online Fair - A Fair To...
Some of you might wonder why I'm posting this since it seems related to cf and immune supressed people. This is a bad bug that is hard to get rid of if you...
Hi, my name is Becky and I just wanted to say hello to everyone. I was diagnosed with CF at birth. When I was 2 days old I had a Bowel Obstruction. Now I am...
My name's Emily, and I am an "unusual" CF case--diagnosed at 11 yrs., and I just had a double lung tx in July of 2005. I'm 24 and am currently working for the...
help i cant find you at freewebs.com/cflife 9they had lot cflife...sites), you may need to stamp your site w/ BECKY or L NAME or HOBBY !!! GD BLESS YOUR EVERY...
The cystic fibrosis pen pal club still has there store up and running and we have new stuff at are store as well please come and check are store out . if you...
Hello everyone, I am in need of some help for a friend, something I have had no experience with but have seen other's talk about and was hoping that someone...
Hello Cloyce, My cousin, who does not have CF, is currently on a growth hormone. She started it at age 15 because she had not started her monthly cycle and was...
My name is Gina Mackintosh and I am a Child Life graduate student at Mills College in Oakland, CA. I am presently engaging in a research study about...
Hi Rachael, Thank you so much for sharing your cousin's experience on growth hormones.....believe me, every little bit of information will help her to make her...
It's my pleasure. I spoke to my cousin this morning about her experiences and she said that if you have any questions she will be happy to answer. :) ~ rach ...
Hi Gina, My daughter had already had her tx at age 16 at Children's in Los Angeles, but she did still go to Children's in Madera CF clinic when L A needed...
Dear Cloyce, I am a member of the CF support group, in much the same way you are. My son Tristan is 18mo. old w/ CF. From the day of our son's diagnosis, my...
Hello, I found this group in hopes of some answers. My daughter was born Dec.27,2006. Her heel stick test has screened a positive result for one CF mutation....
Yes there is that chance that she is just a carrier. my understand is that both parents have to be carriers. I am 35yrs old and was diagnosed only 2yrs ago so...
Danielle, My advise to you is to just have the sweat test done, so you know for sure. Not all mutations of CF are the same, and many babies won't show any...
Hi Deb, It's a shame that the pulmonology dept. put you, your husband and son through all of that.....to top it off it was all for nothing! You and your...
Hi Danielle, It would be a good idea to have the sweat test done.....but since your little one is not quite a month old I would wait a few more weeks. My...
Hi, Some CFers do not show many signs, or any signs of the CF, until they are much older. Because she is so young the sweat test is not reliable. If it shows a...
I wasn't diagnosed with CF until I was 11, since there was no family history; I was diagnosed as having allegies, sinuitis, you name it. I continued to gain ...
A sweat test isn't 100% The only test that is the most accurate is the Ambry Genetic testing since I believe it screens for the most Mutations. People could...
Hi everyone, Life has been something else the past week so I¡¦m just doing a general e-mail with all topics. So I hope you don¡¦t mind, just skip over the...
Hi, I am new to this group as of today. I was diagnosed with CF after my first child was born, at the age of 31. I am lucky in the fact that obviously I have...
Hey Carol, you weren't diagnosed with cf until you were 31? Wowsers I never heard of that. My sister had cystic fibrosis and lived till she was 34 back in...
Hi Carol, Welcome to the group. :) As a CFer diagnosed as a baby, I have never experienced the salt water phenomena you are speaking of. It's very interesting....
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