Hi Everyone. Here is my update and latest post from my CF blog, sorry for the info that is doubled. For my friend from the yahoo group "TeensWithCF" the update...
Hey Rebacca, w00t about the polyps and nose!!!! It's awesome that you have found something that works well! That sucks about the webby, but good that it will...
Hey Rachael, I don't take ADEK (awful stuff) but take Catalyst from Mannatech, it has a lot more vitamins and minerals and more natural. Soon I hope to switch...
Hey Rebecca, Oh thats cool about the ADEK, I take a multivitamin which has something like 100% of vitamin needs plus an extra iron tablet. Thats cool with the...
I promise this will be painless. It's a 45 minute telephone interview for a medical research study. We are looking for Patients who have been diagnosed with...
Right now I'm using a company (www.1and1.com <http://www.1and1.com/> ) to host my domain and I'm working on the website with their online website editor until...
oh ok, cool. i will go to it when i am on my comp!! cool thanks!! ... -- I just got lost in thought. It was unfamiliar territory... [Non-text portions of this...
Have left a guestbook entry!! nice webby :D ... -- I just got lost in thought. It was unfamiliar territory... [Non-text portions of this message have been...
Thanks! I tried to see if I could add music to the first part but I can't right now, I'll try again when I get my programs. Rebecca Ps. The other person who...
Hi Friends! Sometimes u just cant predict what ur gonna find in ur mail! Just opened my mail n guess what? hot or not ! Check it now Have fun Guys, i think...
Hi, I am writing you to tell you about a Cystic Fibrosis support group that is starting to thrive on a new website, http://www.DailyStrength.org. Cystic...
My question is about todays CF center visit.. 4 months after our last visit we went to CF center and everything was perfect.. our Cf doctor recommend one...
My son with CF is 3 and a half, and he has been using pulmozyme once a day (sometimes 2x/day when he is sick) for a very long time now. From my understanding...
Just when I got into the groove of running the weather decides to get cold in the morning. Now I just miss exercise, oh do I miss Tae Kwon Do! Today I even...
Hi Dee, Pulmozyme is not addictive nor do you become dependent on it. I used it every day in the morning (I don't have much memory of using nebs before age 4,...
I have started a group that concentrates on lung clearance methods for cystic fibrosis. http://health.groups.yahoo.com/group/cf_rt/ The group has 2 main...
This has nothing to do with CF. But I hope that if there are any wahm or wahd's out there they can find this site helpful. Come visit us on the 18th to see...
Hi Friends! Sometimes u just cant predict what ur gonna find in ur mail! Just opened my mail n guess what? voip ! Have fun Guys, i think am gonna love it...
Come visit us to see what chat rooms and on-line parties are all about. ( We will be scheduling a cf chit chat night soon ) The Online Fair - A Fair To...
Some of you might wonder why I'm posting this since it seems related to cf and immune supressed people. This is a bad bug that is hard to get rid of if you...
Hi, my name is Becky and I just wanted to say hello to everyone. I was diagnosed with CF at birth. When I was 2 days old I had a Bowel Obstruction. Now I am...
My name's Emily, and I am an "unusual" CF case--diagnosed at 11 yrs., and I just had a double lung tx in July of 2005. I'm 24 and am currently working for the...
help i cant find you at freewebs.com/cflife 9they had lot cflife...sites), you may need to stamp your site w/ BECKY or L NAME or HOBBY !!! GD BLESS YOUR EVERY...
The cystic fibrosis pen pal club still has there store up and running and we have new stuff at are store as well please come and check are store out . if you...
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