Hello Stephanie, No, my situation was no where near the same as yours. I'm a parent of child w/cf. We have been living with the knowledge for years. I wondered...
I believe that you can get an exception for the vest are far as luggage because it is medical equipment should you decide to take it. I don't believe that...
Hello everybody! I don't have CF but one of my close friends does. She is 31 and was diagnosed about 15 yrs ago. She has 2 healthy little girls which we are...
I'd like to introduce ePer 100 - very effective for CPT (Chest Physiotherapy). As a mother of CF daugher I know all issues related to CPT and I believe ePer...
Hello Everyone, I just wanted to let you know about a fundraiser for the Milan Foundation. The owner of SuperWAHM.com will be donating the funds from those who...
That looks like a nice one, but is that one available in the US. I have something similar by TEKO. I do prefer to have manual CPT over the vest. Yes we have...
Thank you for the response. I sell ePer 100 on the Internet, I can ship to US. I am in the process of establishing sales points in the USA. I'll have somebody...
Welcome Kim to the group! You sound like such a nice friend to have joined the group to learn about your friends battle. Two healthy girls, a blessing. :) I am...
hi this is david im looking for squeeze bottles that have the straw in the lid they come in all different sizes they are used for cold liquid like water, pop...
HI Cloyce, Sorry for the delay in the response. Thank you so much for the words of advice and kindness. My fear for Karen's kids is that if sometihng happens...
Hello Kim and Welcome! What a wonderful friend you are!!!!!! I don't know that one could have a better friend that what your friend has now in YOU :-) To be...
Hello Patti, That's okay....I'm late in replying lately myself. But I do save with the intentions of replying! *smiles* Yes, I can understand your fear...and...
Hi David....the squeeze bottles you are looking for.....are the straws removeable from the bottle? Or is it fixed permanently to the lid? I know right now all...
Hi David I don't know if you've tried places like walmart,target, drug stores, etc. Like Cloyce said, summer items are coming out and i have seen similar...
Hi Kim Welcome. You are a gem for a friend. She is lucky. There is a lot of info. out there. i am 33 and was dx'ed a few weeks ago and am still learning...
Hi, everyone! Once again, please DO NOT open the previous e-mail, it encourges. I have reported it to our Moderator and he will block the address from future...
Calling All Vendors!! The time for the Summer Salebration Vendor Expo is drawing near and we are looking to fill our schedule. All registration fees ($3 for 1...
Cystic fibrosis is a devastating genetic disease that affects children and young adults. Advances continue to be made in finding a cure, but your help is...
Greetings readers: Here is a relied message from Cindy, who is now setting a website for teens with CF. If you don't see yourself or your family as a teen,...
Hello, My heart and thoughts are with you and your son during this time. I know what it is like to be in the position you are in now with your child in need of...
I've been a lurker on this board for some time, but have never posted. It is time I shared our story…..and I have many questions that maybe some of you can...
SAYS HE MUST CLEAN UP LOT BACTERIA 1ST!!ALSO WEANIN HIM OFF PREDINASONE/DRS HAD HIM ON TOOOOOO LONG!!!NO TRANSPLANT YET,MAYBE,NEAR FUTURE!! THE NEW DR WANTED...
Hey, Welcome to the group, even though you have been a lurker for some time, welcome anyway. :) We've been pretty quiet here lately. I'm 19, from Australia and...
I wish I knew how to explain it all to you but the answer is most definitely yes....there was just this specific discussion on cfparents about keeping the cf...
J'Ann, Okay, I understand about the prednisone taper.....but I thought I would send you this website my friend has. It's about lung transplant and is for...
I realize I didn't actually introduce myself. My name is Jennifer, I'm 33 and married with two children. My husband and I both had genetic testing done when...
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