... My name is Debbie, and I just wanted to let you know that, your not alone in this. My husband and I found out that we were CF carriers 4 months into my...
I was wondering if there was anyone who is working full time to get there health insurance and is able to get bcmh? I want to make sure I dont make to much to...
This might be a stupid question, but what is BCMH ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the...
Is it some type of Blue Cross? Love & Hugs Cloyce mom of Tara 23 w/cf, tx'd 5-27-99, diabetes author of:Inner Strength, One Family's Experience with Cystic...
Good morning everyone! First of all let me apologize to any of you whom belong to several lists on the cf subject and will have to see this messege a few...
Thank you for informing us about the book. :) ~ Rach. -- "It is never too late to be what you might have been" ... [Non-text portions of this message have been...
Thank- YOU! I got an email tonight that said the first printing of the book sold out, so they are into the second round. That's very exciting for us, and It...
Hey everyone!!! Gosh I have missed you guys!!!!! I am so sorry to have "disappeared" for a while but please know I have been thinking of you guys. It got...
hi this is david and i wanted to let you all know that im starting a talk group on the nextel network starting on april 4 06 if you would like to be included i...
Hi Sue, It's so good to see you and Valerie are back with us!!! Oh I do hope that your back pain has been cured. You sure have been missed! :-) Do you know...
Congratulations Carrie!!!! Such wonderful news! Wishing you the very best with your book! Love & Hugs Cloyce mom of Tara 23 w/cf, tx'd 5-27-99, diabetes author...
Hi there, Welcome! I don't have cf, my daughter does but I did want to say welcome :-) Isn't it something after all these years to finally have a name to what...
Cloyce You are so sweet. Thanks so much for the kind words and hugs. My son most likely will have mild sx's (genetic testing is so amazing) which we are going...
Allison, I have no clue to this day what our cf mutations are! I have known about cf for 30 yrs....my first son had cf as well. Then along comes Tara and she...
Cloyce, These days it really is not all that expensive to learn what mutations are present in CF. Well, that is sort of true anyhow. There is one commercial...
Hi guys I am learning all about the genetic testing for CF now. Our bloodwork was done through this amazing company (its a start up in CA) called Amby...
Hi guys I am learning all about the genetic testing for CF now. Our bloodwork was done through this amazing company (its a start up in CA) called Amby...
Hi my name is Stephanie and I was dx 15 months ago @ ago 33. I am 34 now and I would be glad to answer any questios I can. You can email me directly...
Dear all, First of all my daugher/15 months has been on antibiotic (amocixillin-I may spell wrong) for 10 days because she had an ear infection. We got Vest...
Dick, To find out about testing would we go to the cf clinic? Or could any doctor put in for that request for screening? If my daughter was tested to see what...
Hello Dee, This has to be so hard for you to put your little girl through the vest treatment, knowing she doesn't want to do it...and by any other standards...
Hi Allison, Where abouts in CA is Ambry Genetics? Probably by Stanford, huh? I am in CA. I could probably drive there! lol But I wouldn't want to if I didn't...
Hi Stephanie, How are you doing now since your diagnosis? Has it made a big difference for you since you finally got diagnosed? Fifteen months.....you have had...
Dee You need to contact your doctor on this. From what I know, you have to be a certain weight. like 40 LBS to use the vest. [Non-text portions of this message...
Cloyce, Any doctor can draw the blood sample for the test that was run on me. If I recall it needs to go into a vial with EDTA preservative. That is no...
Thanks for the answers. This is very interesting...my son had both digestive and lung issues. He is one that had the big belly. Now my daughter does not. She...
Hi Cloyce Amby is in Irvine. Their # is 949 900 5500. They are really nice too. We had to wait about 4-5 weeks for the results, which was nerve wracking, but...
Hi- I am new to this group and I am so glad that I found it!!!! My husband has CF. He is almost 37 and really doing remarkably well. His sister is 38 and...
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