Steph, I guess how you define normal would need to be outlined. I'm at 34%
but do remember 38% well. For me that was my big jump between short of
breath sometimes to now most of the time depending on exertion. Big drop of
energy at 38% but yet usually livable without an oxygen tank in most cases.
More bad days than at 40%. I was definitely unable to do a 9-5 on my feet
job. But others may be able to do that. I could walk and exercise but
nothing too strenuous. Running became difficult even in short spurts. At 38%
I needed IV's every 3-6 months because of infections. 38% is hard, CF is not
alot of fun. Do your best to try to hold or increase your lung function. It
can be done if you have the will. Lisa 44wcf

-------Original Message-------

From: stephanie
Date: 09/11/05 03:04:17
To: cysticfibrosissupport@yahoogroups.com
Subject: [Cystic Fibrosis Support] Trips to the Hospital

I have a few more questions for you guys: First I would like to know if
have to go in the hospital for a tune up about evry three months is
normal or no. Also I have only 38% lung capicity, is there anyone out
there that lives a normal life w/ that little lung usage and if so
please tell me how you do it. thanks
Steph~














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