Hello.
I appreciate your heart in wanting to help your sister. That is great.
We have a two year old son with CF.
My wife and I are Christians and the Bible was a great comfort to me. I was led
to read Psalm 139- that passage clearly says that God knows us all in great
detail while we are in the womb. It also says that He stitches each child
together with great care. It was no mistake that He took a recessive gene from
me and my wife and stitched them together to give my son CF. I do not know why
but I trust God's loving and providential hand.

This may be a help to your sister, to know that she and her husband are not
being punished by God nor is it just a matter of statistics and she drew the
unlucky straw. It is providence and He makes no mistakes.

Also, I would read books or articles on the subject to become more familiar with
the causes, symptoms and treatment of CF. I know my wife and I just need help
around the house, but we have no family to help us. Caring for a CF child takes
a lot of work but if you have other children it is even more work. Your offer to
help her with whatever she needs would be invaluable.

I hope this helps some.

Jeff


----- Original Message -----
From: happyday4me2000
To: cysticfibrosissupport@yahoogroups.com
Sent: 3/31/2005 2:25:50 PM
Subject: [Cystic Fibrosis Support] (unknown)



Ok, is this how this is done. If it is, I am wanting to know what I
can do to help my sister. Her 8mo. old son has been diagnosed w/ CF
and I am fairly ignorant on the subject. I have always been
the "fixer" in the family and now I'm not even sure how to help. She
is young and I think maybe a little overwhelmed by the situation and
with all the free advice advice coming from 1001 friends and
relatives. I just want to do and say the right thing so that she will
be open to my help over the long term. Does this make sense. I hope
I'm not wasting anyones time. I just care.




Yahoo! Groups Sponsor
ADVERTISEMENT






Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/cysticfibrosissupport/

To unsubscribe from this group, send an email to:
cysticfibrosissupport-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

[Non-text portions of this message have been removed]