I'm so glad to hear your son is doing that well! I have had ups and
downs too, but there always seems to be a light at the end of the
tunnel. Last year in November my lung functions were down to 72%. After
a round of strong antibiotics and about a month of rehab I was up to
102%! It was a great accomplishment for me. I have slipped back down to
89% since this November but the sinus surgery I had yesterday (which I
have discovered is easier the second time) should help improve that. I
will be praying that your son's health continues to improve! And Samie
don't give up hope on your brother I am praying for him! I've been there
and back before



-----Original Message-----
From: Tammy Lynn [mailto:daisymaisysue@...]
Sent: Tuesday, March 01, 2005 5:49 PM
To: cysticfibrosissupport@yahoogroups.com
Subject: Re: [Cystic Fibrosis Support] New Here



Hi Samie. My son has had pneumonia many, many times. He is only 11 but
we have known about the cf since he was 3. At one point his lung
function was only 54%, that was a couple of years ago. He went into the
hospital again and has steadily improved. We just went to clinic last
week and his capacity is now at 98%. We have brought him home many times
on iv antibiotics and gotten him through the tough times. One thing I
have learned is try and not worry to much, and take it a day at a time.
Hopefully your brother will be just fine but not knowing his
circumstances all I can do is wish your brother well and a speedy
recovery. I know it is hard but try and be strong for his sake. CF sucks
but its not a death sentance anymore. Hope and pray.

Samantha <oompaloompa0813@...> wrote:
Hello everyon. I am Samie. My brother is 17 and has Cystic
Fibrosis. He is currently in the hospital, and I am getting scared
this is his final time. Can anyone tell me how to tell if a kid with
CF has Pneumonia? My brother's temperature, with Motrin, is
102...and he almost passed out with his PFTs. He is on oxygen.




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