My brother almost past out during the PFTs...we don't know what the
current lung functions are. All we know is that last time, when he
was as well as he could get, his trapping was in the 70s, and his
functions in the 60s or 70s. The nurse told my brother(jason) just
to stop trying...then emergency oxygen was called when he
got...lightheaded? I guess you would call it. He is my baby
brother, so I worry about him. I want to have my wedding
before...you know. I am only 18...does anyone else know the hell it
is to be in this kind of family?


--- In cysticfibrosissupport@yahoogroups.com, Tammy Lynn
<daisymaisysue@y...> wrote:
> Hi Samie. My son has had pneumonia many, many times. He is only 11
but we have known about the cf since he was 3. At one point his lung
function was only 54%, that was a couple of years ago. He went into
the hospital again and has steadily improved. We just went to clinic
last week and his capacity is now at 98%. We have brought him home
many times on iv antibiotics and gotten him through the tough times.
One thing I have learned is try and not worry to much, and take it a
day at a time. Hopefully your brother will be just fine but not
knowing his circumstances all I can do is wish your brother well and
a speedy recovery. I know it is hard but try and be strong for his
sake. CF sucks but its not a death sentance anymore. Hope and pray.
>
> Samantha <oompaloompa0813@y...> wrote:
> Hello everyon. I am Samie. My brother is 17 and has Cystic
> Fibrosis. He is currently in the hospital, and I am getting scared
> this is his final time. Can anyone tell me how to tell if a kid
with
> CF has Pneumonia? My brother's temperature, with Motrin, is
> 102...and he almost passed out with his PFTs. He is on oxygen.
>
>
>
>
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