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cysticfibrosissupport · Cystic Fibrosis Support - A Cystic Fibrosis support group
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Reply | Forward Message #777 of 1698 |
Re: [Cystic Fibrosis Support] New Here

Hi Samie. My son has had pneumonia many, many times. He is only 11 but we have
known about the cf since he was 3. At one point his lung function was only 54%,
that was a couple of years ago. He went into the hospital again and has steadily
improved. We just went to clinic last week and his capacity is now at 98%. We
have brought him home many times on iv antibiotics and gotten him through the
tough times. One thing I have learned is try and not worry to much, and take it
a day at a time. Hopefully your brother will be just fine but not knowing his
circumstances all I can do is wish your brother well and a speedy recovery. I
know it is hard but try and be strong for his sake. CF sucks but its not a death
sentance anymore. Hope and pray.

Samantha <oompaloompa0813@...> wrote:
Hello everyon. I am Samie. My brother is 17 and has Cystic
Fibrosis. He is currently in the hospital, and I am getting scared
this is his final time. Can anyone tell me how to tell if a kid with
CF has Pneumonia? My brother's temperature, with Motrin, is
102...and he almost passed out with his PFTs. He is on oxygen.




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Tue Mar 1, 2005 10:49 pm

daisymaisysue
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Message #777 of 1698 |
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Hello everyon. I am Samie. My brother is 17 and has Cystic Fibrosis. He is currently in the hospital, and I am getting scared this is his final time. Can...
Samantha
oompaloompa0813
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Mar 1, 2005
5:00 am

Hi Samie. My son has had pneumonia many, many times. He is only 11 but we have known about the cf since he was 3. At one point his lung function was only 54%,...
Tammy Lynn
daisymaisysue
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Mar 1, 2005
10:49 pm

My brother almost past out during the PFTs...we don't know what the current lung functions are. All we know is that last time, when he was as well as he could...
Samantha
oompaloompa0813
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Mar 2, 2005
3:02 am

I'm so glad to hear your son is doing that well! I have had ups and downs too, but there always seems to be a light at the end of the tunnel. Last year in...
Caryn Silliman
spiffy_spott...
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Mar 2, 2005
8:57 pm
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