Grandmom Bev is also on Cystic-L. What is Cystic-L? It's an Email
Community! It's a Website!
####################################################
CYSTIC-L is a free email service dedicated to the exchange of information
and support specific to cystic fibrosis. Since 1994, CYSTIC-L has been
sharing both casual banter about the varied impact that CF has on our
lives, as well as technical and medical information exchanges that help us
to overcome the more unpleasant factors that this silly little gene imposes
upon us. There are over 600 list subscribers sending a total of around
20-60 messages per day; a digest option is available which compiles
messages and distributes them periodically during the day. Members include
people with CF and those who share their lives: medical professionals,
scientists, researchers, parents, grandparents, spouses, siblings, friends
and significant others.
To give us a try send the following line in the *body* of an email to
LISTSERV@...
SUBSCRIBE CYSTIC-L Your-first-name Your-last-name
Note: Listserv will send you a confirmation request for every command you
send to it. Your command will not take effect unless you respond to the
confirmation request (so be sure to wait a couple of minutes to receive and
respond to the confirmation request).
#######################################################
Ok, so you know about the vibrant on-line community available on the
Cystic-L mailing list. But are you taking advantage of the OTHER FREE
BENEFITS available to Cystic-L subscribers? Are you using *these* resources:
The Cystic-L Archives - all messages from our beginning in 1994 right
up to the message distributed just a second ago! Sure, you can browse the
messages chronologically by date, but why not use the powerful search
engine? Searches can easily be made not only on keywords in the body of
messages, but also on address of sender; before, after, or between
specified dates; keywords in the Subject line of messages -- or any
combination of these items!!!!
The Cystic-L Handbook - a HUGE amount of information distilled from
Cystic-L posts, arranged by subject. Not only medical stuff, but how-to
tips, CF humor, and lots of pointers to additional sources of
information. Don't stop at the first Table of Contents - keep drilling
down, this is a very DEEP well of material!
The CF Shop - CF-related merchandise (no, not medicines and
equipment!) - it shows you what's available and where to get it. The
bookstore in the CF Shop contains the largest list of CF books anywhere
(some with reviews/comments by Cystic-L subscribers, some written by
Cystic-L subscribers).
The Cystic-L Photo Archives - 3 main sections: the largest section
called "CF Community", "Parents With CF" (that's right -- they have CF
*and* they have children!), and "Memorials to Those We've Lost". Be sure
to click on the thumbnail photos to see larger photos and more details
about the person!
Want Research News? How about constantly updated newswire stories
about CF? Or maybe you want cystic fibrosis news from current medical and
healthcare journals? You can get it all with a click!
Entrance to each of these resources (and more!) is available with a single
click on the Cystic-L homepage. How do you get to the homepage? Just type
the secret password into your browser and you're there! [Huh? You don't
know the password? Sure you do!!! It's: Cystic-L -- that's all, just type
Cystic-L then hit the ENTER key, and your browser will take you there!]
At 08:48 PM 11/30/04 -0800, you wrote:
>Hi Nicole,
>
>Your talking about GrandMOMBev, she is on cfparents group.
>
>
>Robin A, IL
--
Check out the CYSTIC-L Homepage at http://www.Cystic-L.org
________________________________________________________________________
Ron Trueworthy . . . . . Your CYSTIC-L Host . . . . . . Ron@...