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cysticfibrosissupport · Cystic Fibrosis Support - A Cystic Fibrosis support group
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31 male with CF   Message List  
Reply | Forward Message #726 of 1698 |
New Member

My name Vera I am 33 with CF recently my local clinic closed so I am
trying to find the right for me group to get support. Your site is
one of many I have found if you do not mind I would like to sit back
and just watch for a while if this is not ok let me know and I will
unsubscribe. I have join several groups so you may see message from
any other groups you may belong to. Is there any information you
would like me to share with group once I decide to stay.



Vera




Tue Sep 7, 2004 2:34 pm

crochetgsmom
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Message #726 of 1698 |
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Hi Group, I was born with CF. I had a bowel obstruction when I was born. That's how they found out I had CF. I am 31 now and the area that I live in doesn't...
beth
acerdx
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Mar 18, 2004
3:12 pm

Hi Patrick, My husband is 34, and also has CF. As a child and even a teenager, they had CF support groups where kids with CF would get together and have a good...
Shawna Rose
littlewolf_26
Online Now Send Email
Mar 18, 2004
5:46 pm

hi Patrick my name is glenda and my 10 yr old daughter has cf, even we cant get together , just email me and I will keep a closer eye on my email and we can...
glenda hoke
gigih81
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Mar 19, 2004
3:14 am

i'm a new member of the group and let me first of all say... thank gawd i found a group where people actually talk... now... patrick and everyone else... i...
myrenthia@...
myrenthia
Online Now Send Email
Mar 19, 2004
6:47 am

Hi, When I was 11 I didnt have family support. I was doing everything by myself. Your 11 yr old son needs encoragement. I mean dont get mad at him for not...
Patrick
acerdx2004
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Mar 20, 2004
4:55 am

thanks patrick... we try very hard to let him be more responsible for himself... since he will have to do this the rest of his life... but of course, we are ...
myrenthia@...
myrenthia
Online Now Send Email
Mar 20, 2004
5:48 am

My name Vera I am 33 with CF recently my local clinic closed so I am trying to find the right for me group to get support. Your site is one of many I have...
Vera Heuer
crochetgsmom
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Sep 7, 2004
2:34 pm

Hi Shawna, I am sorry for you and your husbands loss. I just wish there was a way for CF's to talk to compare notes. I am new to online groups. I am thankful...
Patrcik
acerdx2004
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Mar 19, 2004
2:42 pm
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