Wow. I have not heard of a person being 18 when they found out they had cf. My
daughter was diagnosed 3 days after birth she is now 5 years old. she has more
intestinal problems than ling problems right now. she weighs 42 pounds. hang in
there. our thoughts and prayers are with you. sincerely texas

ShalomChai18@... wrote:I am 18 and was just diagnosed with CF after having
lung, sinus and
digestive problems my entire life. My doctors always ruled it out because I have
been
overweight my entire life (steroids... yuck!, and some other not CF related
GI problems) until I ended up spending over a month in the ICU with severe
pneumonias. My sweat tests (I have had 4 of them) were all borderline, but I had
an Ambry Genetic test. There are two different versions, one that tests for
the most common mutations and forms, and one that tests for many more than
the most common. I have two really rare mutations that they are starting to do
more research on, but still don't know what path it is going to take. The
Ambry test is conclusive, it is a blood test. If I were you, I would ask for
both. I live in NC, and was tested at National Jewish hospital in Denver, CO.

Good Luck!

Aliza 18 yo w/ CF, CFRD, o2 24/7

~ aLizA chAnNa ~

"all the world is a narrow bridge. the important thing is not to be afraid!"
~ rebbe nachman of bratslav

"if i am not for myself, who will be for me? if i am only for myself, what
am i? and if not now, when?" ~ pirke avos


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