My name is Renee and I have a two and half year old nephew who has
CF. He is my world. (this has been hard on our whole family) I
wanted to post this message to let you know our family has put
together a video about "Joseph" my nephew and CF.
I am also a writer in Nashville TN and wrote a song(along with Co-
writers) in his honor, called "CHILD OF LIFE"
I am a new artist on RCA records (under BNA) and hope to
have this song on the record to raise "awareness" and raise money
for the foundation. (www.rcalabelgroup.com) BNA
I am only sharing all of this with you in case you would like a copy
of the video. (it's free) We are in the process of setting up a
website WWW.CHILDOFLIFE.COM where you can view the video and lots
of information and or have it sent to you free. (it really is a
wonderful video) we hope to have it up and running in two weeks...I
will post again when it's ready. It will be a wonderful tool to help
people understand CF and what Joseph's life is like on a daily
basis. I dedicate my life to helping raise money and fighting for a
cure. You better believe every chance I get to talk
about CF, I will. I keep all of you in my
thougths and prayers and please feel free to contact me with extra
information. Best Wishes to everyone.
Renee