Does your Grandson have a CF doctor that is a specialist, or just a
primary care doc? Usually CF specialist docs are more than happy to
let you borrow educational videos that explain CF, it's treatments,
what to expect later on down the road, and what you can do to take
care of your grandson. If he has a primary care doc who is a
pediatrician, you will probably be lucky and find videos there too.
Also the website http://www.cff.org is a wonderful website with lots
of true information. I know alot about CF. I'm 25, had a liver
transplant in '99. Now I am awaiting a double lung transplant. If you
need someone to talk to my email address is
Nashville911dsptchr@...

God Bless,
~*~Jessica~*~

--- In cysticfibrosissupport@yahoogroups.com, "irishdancer_57"
<irishdancer_57@y...> wrote:
> I am new with your group and with Cystic Fibrosis. My grandson who
> is 7 has this disease. What can a grandparent do to find out what
> can be done for my grandson and are there support groups who can
> help you with support and information on this disease. Need help