hey, i don't no any spanish but i can talk about cf
because i have a 23 month old cosuin that has it. he
was only 3 weeks old when he got it. well what i mean
it that his parents got told about it when he was 3
weeks old. it is very sad. but he is a happy little
boy. kim --- vanesa <vanesapaola@...> wrote:
---------------------------------
HI!! It's been a long time since I last wrote here,
but I've been reading all the messages. I'm from
Argentina and I'm 23 w/cf. I have no problem in
talking to your daughter in law in spanish, since
that's my mother tongue. I'm not a doctor but I may
help her with some doubts or just talking about life
with CF. That's all I can do for you. May be she wants
to talk face to face with parents...well just let me
know. Sorry if my English is not very good!
Vanesa.

larapintavian <larapintavian@...> wrote:

Does anyone know of such a group, preferrably in the
midwest?

My daughter-in-law is from Guatemala, and my 3-yr--old
grand daughter
(diagnosed at age 6 mos) seems to be the only CF child
of Hispanic
heritage in OK. While her mother speaks Enlish quite
well, reading it
is still stressful and the info given her in Spanish
is very sparce.

Alex was over a year old before the CF clinic started
regularly
bringing Spanish speaking staff to her regular check
ups (they
finally figured out that her mother was under great
stress trying to
make sense of everything in English, especially since
she had never
heard of CF before Alex' diagnosis.) Now, we quite
often have Spanish-
speaking interns or residents at the checkups which
makes things much
more relaxed for my dqughter-in-law.

Since she knows no other Hispanic parents of CF
children, I feel it
would be of great benefit to her to get to know a few
(she's quite
shy) and share experiences. We have tried without
success to find
someone within our own state.

Thanks, Sharon


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