HI!! It's been a long time since I last wrote here, but I've been reading all
the messages. I'm from Argentina and I'm 23 w/cf. I have no problem in talking
to your daughter in law in spanish, since that's my mother tongue. I'm not a
doctor but I may help her with some doubts or just talking about life with CF.
That's all I can do for you. May be she wants to talk face to face with
parents...well just let me know. Sorry if my English is not very good!
Vanesa.

larapintavian <larapintavian@...> wrote:

Does anyone know of such a group, preferrably in the midwest?

My daughter-in-law is from Guatemala, and my 3-yr--old grand daughter
(diagnosed at age 6 mos) seems to be the only CF child of Hispanic
heritage in OK. While her mother speaks Enlish quite well, reading it
is still stressful and the info given her in Spanish is very sparce.

Alex was over a year old before the CF clinic started regularly
bringing Spanish speaking staff to her regular check ups (they
finally figured out that her mother was under great stress trying to
make sense of everything in English, especially since she had never
heard of CF before Alex' diagnosis.) Now, we quite often have Spanish-
speaking interns or residents at the checkups which makes things much
more relaxed for my dqughter-in-law.

Since she knows no other Hispanic parents of CF children, I feel it
would be of great benefit to her to get to know a few (she's quite
shy) and share experiences. We have tried without success to find
someone within our own state.

Thanks, Sharon


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