Search the web
Sign In
New User? Sign Up
cysticfibrosissupport · Cystic Fibrosis Support - A Cystic Fibrosis support group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want to share photos of your group with the world? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Support for Spanish Speaking Parents of CF Kids?   Message List  
Reply | Forward Message #449 of 1698 |

Does anyone know of such a group, preferrably in the midwest?

My daughter-in-law is from Guatemala, and my 3-yr--old grand daughter
(diagnosed at age 6 mos) seems to be the only CF child of Hispanic
heritage in OK. While her mother speaks Enlish quite well, reading it
is still stressful and the info given her in Spanish is very sparce.

Alex was over a year old before the CF clinic started regularly
bringing Spanish speaking staff to her regular check ups (they
finally figured out that her mother was under great stress trying to
make sense of everything in English, especially since she had never
heard of CF before Alex' diagnosis.) Now, we quite often have Spanish-
speaking interns or residents at the checkups which makes things much
more relaxed for my dqughter-in-law.

Since she knows no other Hispanic parents of CF children, I feel it
would be of great benefit to her to get to know a few (she's quite
shy) and share experiences. We have tried without success to find
someone within our own state.

Thanks, Sharon




Sun May 25, 2003 4:49 pm

larapintavian
Offline Offline
Send Email Send Email

Forward
Message #449 of 1698 |
Expand Messages Author Sort by Date

Does anyone know of such a group, preferrably in the midwest? My daughter-in-law is from Guatemala, and my 3-yr--old grand daughter (diagnosed at age 6 mos)...
larapintavian
Offline Send Email
May 25, 2003
4:49 pm

HI!! It's been a long time since I last wrote here, but I've been reading all the messages. I'm from Argentina and I'm 23 w/cf. I have no problem in talking to...
vanesa
vanesapaola
Offline Send Email
May 25, 2003
11:02 pm

hey, i don't no any spanish but i can talk about cf because i have a 23 month old cosuin that has it. he was only 3 weeks old when he got it. well what i mean ...
kim martin
the_evil_3
Offline Send Email
May 28, 2003
1:01 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help