CYSTIC FIBROSIS TEEN & ADULT DAY RETREAT

The Great Outdoors: A Breath of Fresh Air!

Need support in dealing with the challenges of CF? Looking for some guidance in
the CF journey? Come to CFRI Retreat! This is an amazing opportunity to connect
with others with CF in a fun and SAFE atmosphere.

Summer is here folks, and that means it's time for the Annual Cystic Fibrosis
Teen and Adult Day Retreat! This year, it is from August 2 (Sunday) to August 9
(Sunday), 2009 in Menlo Park, California, just a few miles from Stanford
Hospital. As an attendee for over 15 years,
I would like to invite you to this exciting summer event. The annual CYSTIC
FIBROSIS TEEN & ADULT DAY RETREAT sponsored by Cystic Fibrosis Research, Inc.
(www.cfri.org).

This retreat is a place for hope and healing as we learn more about CF and each
other. This year's retreat's theme is :The Great Outdoors: A Breath of Fresh
Air. Our retreat features educational workshops on singing for airway clearance,
osteoporosis, finding purpose, and support groups covering medical issues,
relationships, and coping. We also have lots of theme based fun events including
arts and crafts, sports, talent/costume shows and boating.

The CFRI Day Retreat welcomes teens and adults 15 years and older with CF, their
spouses, family members and friends. However, due to cross infection concerns,
all people with CF are required to obtain a sputum culture before the start of
the retreat. People who have ever cultured Burkholderia cepacia, cultured
Methicillin-resistant Staphylococcus aureus (MRSA) within the past 2 years, or
are currently resistant to all antibiotics will not be allowed to attend.
Participants must comply with cross infection behavioral precautions.
The cost of retreat is $65 per person for the entire week and includes 3 meals a
day. Daily fees are $15 per day. Overnight accommodations are available onsite
and locally. Scholarships are available!
Previous attendees have raved, " This was my first year.... what I did
experience was possibly life -altering.... the whole week was such an incredibly
therapeutic experience for me and my girlfriend. The hardest part was leaving."
-man with CF, age 31

"CFRI Retreat is such an important part of my life. It motivates me to take care
of myself, to live, love and cherish those around me. The friends I met there
are as close as family." -adult with CF, age 36.

"Retreat has been a transforming experience in my life. I have learned so much
about how to take care of myself, and it inspires me to keep fighting. The
friends I have made here understand my life in a way no one else I know does."
-adult with CF, age 27


We encourage you to consider joining. If you can't come the whole week consider
coming just for a day or a few. Join us for a week of camaraderie, support,
learning, and love. You are guaranteed to leave touched by this fulfilling
experience, having spent the week or part of the week enriched by our community,
sense of humor, depth and creativity.

For more information, please contact Jessica Martens, Retreat Chair, at
jemartens@... or call CFRI at 650-404-9445, email cfri@... or
visit www.cfri.org
Applications are being accepted now. Sputum cultures must be submitted between
June 18 - Aug 1 for approval to attend so act now!
We hope to see you there! - Ana Stenzel, Retreat commmittee