My daughter, too, has had problems with some of her teachers.  And I'm a teacher
myself!  I finally had to get my daughter an Individualized Health Plan.  Once
accomodations are made and the doctor signs it, teachers have to follow it and
it's a legal document.  If they violate it, the school, district, and/or teacher
can be sued.  It's a shame to have to go to such extremes to get teachers to do
the right thing!!!  So, I understand how you feel.  I haven't had much support
on the message board, but it doesn't seem fair that one girl had a broken ankle
and didn't try out, but was put on the team.  Another girl had a pulled groin
and the judges were notified to "cut her some slack."  How is having a
respiratory infection any different? 
 
I guess it's difficult to look at my daughter and see this tanned, beautiful,
blond girl that is always happy and realize how sick she really is.  In fact, it
motivated her to give an interview to our home town newspaper during May for
National CF Awareness Month. 
 
I am so sorry you had such a bad time in high school.  As if that time in your
life isn't hard enough!  My daughter says that nobody really understands the
medicine, therapy, PICC lines, doctor visits, intestinal issues, coughing, etc. 
A few weeks ago, one of her teachers made her sit out in the hall all period
because she was coughing and was afraid she'd make the other kids sick!!  How
ignorant!  It's had when you feel like nobody understand what you go through.
 
Hope you're doing well!!!
 
Thanks for letting me rant!  I'm still pretty mad about cheerleading and have
gone to the district office aobut it.  But...nothing.  My daughter is so sad
about not cheering and it breaks my heart.

--- On Tue, 6/2/09, missgoobergirl <bradleywsnyder@...> wrote:


From: missgoobergirl <bradleywsnyder@...>
Subject: [Cystic Fibrosis Support] Re: cf daughter not allowed to cheer
To: cysticfibrosissupport@yahoogroups.com
Date: Tuesday, June 2, 2009, 8:16 PM








--- In cysticfibrosissuppo rt@yahoogroups. com, "revalane" <revalane@.. .>
Hi
I have some horror stories. It it is so unfair but remember those days well.
Sometimes I have to honestly say it was the teachers who were the wrost towards
me. easpecially in high school when I became much sicker. they didn't know how
ill. Just that I missed a lot of school, coughed a lot, couldn't run, and
gurgled. I can tell you high school they treated me like dirt, well some of them
anyways.

The teachers were far worse to me in high school, a few of them, then the
students. I am 31 so it wasn't that long ago. TXed at 26and on 02 at 19. I'd
love to go to the press and tell everyone how some of these REVERED teachers
treated me. The thing was. There was a kid was cancer. He was sick and dying but
b/c you could outwardly see how sick he was they bent over backwards for him and
they made fun of me and my cough and gurgles.

Becki

wrote:
>
> My 16 year old daughter has cheered on her school's varsity cheer team for 2
years. She absolutely loves cheerleading and is her motivation to get up for
school when she feels bad. When Make-A-Wish asked her what she wanted, she said
she wanted to be a high school cheerleader. That's how much it means to her.
Tryouts for next year were last week. She was fighting a respiratory infection
and didn't perform as well as she could. Due to her low try out score, they
didn't put her on the team next year. I asked the principal to make an exception
since she has been a dedicated member of the team for 2 years. She said no. She
said she simply didn't have the score and wouldn't be put on the team. My
daughter is absolsutely devasted. You would think the school would be more
lenient to someone with CF. Anybody have any suggestions?
>



















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