Hey Everyone..PLEASE READ ! ! !

Growing up I never knew there CF Camps. I wish I did. Everyone talks about how
much fun it was. My husband and I, he also has CF, went to CF camp from the age
of 7 till he was 18.

I guess that is why this non-profit and our camp, Camp Mosquito, is so
important to me. Its important for CFers to meet other CFers. It is actually not
a CF camp but targets those suffering campers with Bronchiectasis, that's what
damage is done to the lungs of CF patients, either Primary or Secondary through
infections like in KS/PCD, and Congenital. KS and PCD are cilia diseases almost
like an identical twin to CF without the enzymes.

This is the only Bronchiectasis focused camp in the world. I hope all of the
CF adults/Teens/ and families of the site's kids and teens 5 years and older
will give the camp a chance. We have medical personnel and are set up for
anything. As an example, a camper may need oxygen. Although, we prefer campers
to be at least between 5 and 7 years old. But if they have siblings coming, are
mature, have mom coming too, or just really want to come, they are welcome if
they are 5 and older.There is always medical help on hand throughout the week.
We are set up for those on Feeds and 02. I came to camp on 02 before my
transplant! ! ! I'd also like to see some CF adults. I'd like to make some
friends.
Some of the activities include but aren't limited to this summer :

" The Blob "
Horseback Riding
Crafts
Banana Boat Rides
An Over Night Camp Out on Horseback ! ! ! !
SMORES and a bon-fire
BB Guns
Archery
Night hikes and plays
Crafts
Games
Lung Disorder Education
Waterpark
Etc
We have so much fun. Everyone shows off their port-a-cath's and
G-tubes...lol. The cabins have electricity, A/C, hot showers, etc. We are even
set up for those needing oxygen or feeding tubes, insulin, etc. We know the
tricks that allow those on 02 to enjoy basically everything everyone else does.
Each room is set up by age and sex.
We have so much fun as do the parents.

We love our parents.... We follow strict infection control guidelines ( No
history of Cepacia or those who have cultured MRSA in their lungs in the last 2
years. We also have them get a CF sputum test done in time for camp and they
must collect the last 12 months of sputum culture results and mail them to me so
a doc can look them over and decide if that camper is ok to come. They cannot
come until I receive everything. So far all the rules have worked beautifully
), and in all 6 yrs not one camper has even gotten a cold let alone spread
anything nasty. In fact we've had some who's doctors have said their PFT's and
weight came up ! ! ! Lots of hiking if they can do it ( We know those on 02 its
different ) and swimming.
It is not just a CF camp but a camp for kids and teens with similar
disorders. They are identical lung wise they just don't have stomach problems as
you well know.
I am a nurse and wilderness First Aid Certified and other medical staff is
there. I'll talk about what Ive been up too....its kinda neat.

While I am well and not workingon camp stuff, I am working with a regional SAR
Group(search and rescue).

If you email me privately and request a read receipt to make sure I get it. I
can call you and talk about this more and answer any questions you may have. I
do have flyers and brochures. I am trying to fix up the brochures though. We
have 20 spots to fill and lots and lots of openings. Your child or children will
be safe. Plus it is something they will never forget. It is August 3rd-7th. Its
the only time I could get and they took off several hundred off the price of
registration. We do have somescholarships too.

Also, please pass along this to all your CF Family Friends. The more we have
the better and wouldn't it be great for your kids to meet some of her or your
online friends ! ! !

PLEASE PLEASE help Pass this along ! ! ! Call me anytime with questions.
I'll send some brochures but please start recruiting campers and their families
ASAP. Adults with CF and their spouses are also welcome too.

We have 20 spots to fill. We need your help to try to fill them ! ! ! !

We'll also need a spuum in the Spring time and then send the results and all the
other results over the last 12 months to me. This way we can check for bad bugs.
Those with pseudomonas CAN attend.

Really think about sending your kids and think about coing yourself if you are
worried about sending your child to camp.

Also, if transportation is a problem, we can get mostcampers and staff free
airfare. A doctor must sign a release however. The campers family doctor is
fine. Either a regular doc, Urgent Care Center
( they do physicals ), Pediatrician or Internal Medicine Doctor.We get lots of
kids to fly in to the location and fly out each year.

Also, as an example of cross infection, I know that this is a scarythought but
my hubby has CF and I never got his and he never got mine.

Emailme privately ASAP so I can send you an application.If you email me, Ill
email back with camp photos. The little ones are sooooo cute.

Excuse any mistakes it's late.

Oh yah, most campers and staff members can fly for free via the
non-profit,ANGELFLIGHT. Contact me and I will let you know. Your Primary
/Family/Pediatrcian will need to sign a form. With that they can send me their
culture and their results from over the last 12 months.Then a doctor checks them
over if need be.


Thanks
Rebecca Snyder
Director
Camp Mosquito
904-699-2945
6011 Glenway CT
Richmond,Va. 23225