My name is Renee, I am new to this group. I am a member to the cf
parent chat line.
I have a 5 year old son, Joshua with Cystic Fibrosis, Hydrocephalus,
Epilepsy, high blood sugar being controlled by a diabetic diet, has a
VP shunt on the right side of his brain due to the Hydrocephalus, and
has a feeding tube in his stomach. Joshua was 6 months old when we
were told he has CF, and Hydrocephalus, 7 months old he had brain
surgery to have the VP shunt put in, 17 months old when he had the
feeding tube put in. Everything settled down for a while until Joshua
had his first seizures at 4 years old. Amitted in the hospital for
test, the EEG was not normal it showed Josh has epilepsy. Josh had a
second seizure different from the first one so he has to have a 8 hour
EEG study. The study will show if Josh will have different seizures or
not. If he will then the medicine he is on now has to be changed.

Renee
caringbridge.org/visit/joshuamatlock