Dear Rebbecca,

I hope I have the name right. Can I send you a machine. I feel really
bad about your situation. May I have your permission to send you a
machine for 2 or 3 weeks and see if it makes a difference. If it
doesn't just mail it back to me (at my expense).l

I don't have CF, but I use to have crippling sinusitis, bronchitis,
along with painful and constant lung, throat, & sinus infections. I
was practically taking anti-biotic all the time.

Then I tried this new technology that made a huge difference. I
couldn't believe that I went from sick all the time to hardly ever
sick. Since that time, I used my engineering skills and actually
developed my own line of machines. They are great for allergy and
asthma sufferers, but to be honest we never had anyone try it with CF.

Recently, a friend of mine contacted me and told me that his assistant
has a daughter with RSV. I went over to his work and told her to try
it for two weeks. Her experience is now on my main testimonial in my
new tri-fold brochure. You can see it at:

New Brochure: www.airfantastic.com/pdf/airfanbrochure.pdf

Please email me so that I can send you this unit at no charge. I hope
it makes a big difference. You can email me at markm@....

Mark Mueller
President,
Air Fantastic, LLC
Austin, TX





--- In cysticfibrosissupport@yahoogroups.com, "Becki Snyder"
<prograf_princess@...> wrote:
>
> Hey Guys
> Brad was supposed to go back to work today at the police dept, was
already
> to leave and the doc faxed the police dept. That he couldn't come
back. We
> are furious. If he loses his job, I am finding a new TX center. I
only get
> alone with one of the doctors anyway. He can't do desk duty b/c he's
new and
> doesn't know what to do. I don't know what's gonna happen. If he
loses his
> job, he'll be devastated. The thing is, he's better. His lung
function is
> higher than mine for goodness sake. He's stir crazy to say the
least. He's
> done about a month of IV's. They haven't even seen him. We aren't
getting
> any money either while he's home. His benefits haven't kicked in yet.
> Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr. I hope he can keep his job,
the doc
> say he can't resume duty until the 9th.I am so nervous for him my
stomach is
> tied in knots.He'll be just devastated.
>
> We met the new CF doc yesterday and he was great, new antibiotic
methods and
> everything. Very aggressive. He follows the Danish Method of
treatment. They
> thought he'd been on IV's too long and on the wrong ones.But didn't
want to
> step on any toes this time. HE'll handle the next time he gets sick.
Mayo's
> great for end stage lung disease but knows little about CF
maintance.I am
> hoping maybe he has some ideas or can refer me to another GI doc for my
> chronic pancreatitis.
>
> Hopefully we'll start going to the gym tomorrow. I have been bugging
brad to
> go for awhile now. I need to learn how to run and build up my
strength. I am
> planning on the Transplant Olympics in July so I need to start
training.Not
> sure what I'll do though...swim maybe. I'll see.I am looking forward
to it
> though. We have Camp Mosquito June 16-20th ( I have planned the coolest
> stuff. It'll be the best year yet )and then the TX Olympics is
around July
> 9th. I will be applying for a scholarship to attend.
>
> On a good note. I did my lung function testing and its up higher
then its
> been in 2 years.My bronch was also clean.The RSV I had around
Christmas time
> was gone thank goodness. That was horrible. Made me remember pre
transplant
> life with CF. Coughing all night and stuff. I even had to do nebulizer
> treatments again. I haven't done any neb treatments in 3.5 years! ! ! !
> Thanks to a double lung transplant.
>
> My chronic rejection must be in hybernation.I've been in chronic
rejection
> for 3 years now. Since about 8 months post transplant from stupid acid
> reflux.My lung function dropped big time at first. It dropped like a
rock.
> It would stablize and would drop a little then stablize and drop a
little.
> Its been doing that for three years.Maybe with some hard exercise
and if I
> can ever figure out how to run, it'll get even higher.Proof that Chronic
> rejection doesn't have to be a death sentence. So if anyone is told they
> have BO or chronic rejection its ok to be worried but don't
automatically
> think your about to die. I am too stubborn to think I won't be ok.
Now only
> if my pancreas would work or at least stop hurting.I plan on going
back to
> school again this summer or so. I took this year off for health
reasons and
> for financial reasons.
>
> This summer will be my 9th wedding anniversary.
> We married young.On our tenth we plan on having a wedding ceremony. We
> married at the justice of the peace b/c I was losing health
insurance so we
> never had a wedding. Plus it would be nice to get married without
oxygen! !
> ! !
> I found this church in St. Augustine, its a little stone church I
want to
> use.Then have a reception at one of the bed and breakfasts there.
We'll pay
> for the wedding. We'll make our own invitations on the computer. You can
> make really pretty ones with ribbons and everything. We have no
friends so
> it'll be a small wedding and mom says grandma won't come to my
wedding so ..
> .....
> I just want the church, dress, tux, and pictures. For a honeymoon,
more than
> anything, I want a tour of Eastern Europe. Buy a rail pass and go to
Germany
> ( we are very very German)Switzerland ( we come from there too plus its
> beautiful )Sweden,Belgium,and Ireland ( m3rd generation Irish ).
They are
> all interconnected and one pass pays for you to go to all of these
places.
> Mom said they'd pay for a honeymoon but I'll believe it when I see
it. We
> don't want flowers and expensive pieces for the church, just a dress.
>
> Anyways...Its almost 6:30 now.
>
>
>   
> Sincerely,
> Rebecca R. Snyder
> Director
> 29 year old w/ Cystic Fibrosis, Chronic Pancreatitis, Diabetes,
Double Lung
> Transplant '04, GJ Tube
> YOUNGLUNG Support Services, Inc.
> 1721 Anniston Rd#112
> Jacksonville, Florida 32246
> YOUNGLUNG GROUP
> www.younglung.org
> YOUNGLUNG E-GROUP
> http://health.groups.yahoo.com/group/YOUNGLUNG/
>
>
>
> [Non-text portions of this message have been removed]
>