Hey Guys,
I don't write in much. My name is Becki, I am 29yo and live in Florida. I
also have CF,diabetes,and had a lung transplant.I also had an interstitial
lung disease before my transplant. I also have chronic rejection but its
mild to moderate.

Plus I run a camp for kids, teens, and young adults with chronic lung
disease called Camp Mosquito. I just updated my MYSPACE Page and would love
it if I could make some more friends on there.
www.myspace.com/cysticfibrosisprincess


Many may remember me from my e-group YOUNGLUNG which is a online support
group for teens and adults with chronic lung disease. Its gotten really
quiet lately mainly b/c after my transplant I wasn't online as much but
really want to build it up again and would love if more people would join
the e-group and post their story. Its through Yahoo.The addy to my
organizations webpage and e-group is in my signature. The e group is pretty
cool b/c you can talk about anything and it is moderated to keep spammers
outa there. Its for males and females and anyone over the age of 12. I hope
we can get it up and running again like it used to.

If anyone is interested in our camp please email me privately. We have
strict infection control guidelines and have never had any cross infection
issues. We go swimming and hiking, and play games and have whip cream waters
and water wars and have a lake zipline and all sorts of night activities
plus lots more. I went to camp on oxygen before my transplant so that's not
a deterant. Plus most can get free airfare and we do have scholarships.
Naptimes are daily events for those who need them. The camp is medically
supervised. Its a lot of fun. I have a number of articles proving the
benefits of kids with CF and similar disorders attending camp and articles
proving it is possible to attend these camps and not contract any bugs from
other campers. We do not allow campers with MRSA or Cepacia.
As a kid I never knew anyone like me and wish I did. I was teased at school
for missing to many school days, being to skinny, having a prednisone face
and taking meds as well as coughing and wheezing all the time. Mostly b/c I
rattled when ever I took a breath.

Anyways, please check out my MYSPACE PAGE,my pics on it as well as some
other pics in the pic section, and check out the email group. The website
have a medical library and more.
  
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ Cystic Fibrosis, Chronic Pancreatitis, Diabetes, Double Lung
Transplant '04, GJ Tube
YOUNGLUNG Support Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/



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