Subject: My introduction...I have CF and an ILD

Hi
My name is Becki. I want everyone to introduce themselves to everyone with
their stories.Chronic Pancreatitis,yada,yada,yada.I am 3 yrs out of TX.I
also had an interstitial lung disease that made things worse.I was full of
infection and secretions plus I had no reserve volumn or FVC or Total Lung
Copacity. My FEV1 at Transplant was 10% and on 15L.Not good.

I have a feeding tube. A GJ tube and use the new ZYVEX machine ....its the
size of your hand.I am using Perative.Its already broken down.So my pancreas
doesn't have to work so hard.

I also have chronic rejection but its not too bad.....Bronchiolitis
Obliterans. Or BO.

We have some pics in the pics section.Plus some links and info.

We also have a camp for kids and adults with CF and similar disorders like
ILD's and Bronchiectasis.Pre=teens, teens,and adults should join YOUNGLUNG !
! ! YOU can laugh cry vent or whatever suits your needs.
 
Sincerely,
Rebecca R. Snyder
Director
29 year old w/ CF, Chronic Pancreatitis, Diabetes, Double Lung Transplant
04, GJ Tube
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
YOUNGLUNG GROUP
www.younglung.org
YOUNGLUNG E-GROUP
http://health.groups.yahoo.com/group/YOUNGLUNG/


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