Hello
I want to introduce or for some, reintroduce myself. My name is Becki. I am
29 yrs old and have Cystic Fibrosis( CF confirmed by DNA Test ). I also have
Chronic Pancreatitis, Diabetes, a GJ Tube, and am almost 3 yrs Post Double
Lung Transplant. I also had a PFO repair ( Hole in my heart ) fixed at the
same time.

I am currently back in college and trying to get a degree as a Physician
Assistant. I'd love to go to Medical School but health wise PA school would
be better.Plus I am interested in research.

I also started a non-profit organization called YOUNGLUNG Support Services,
Inc about seven years ago. It first started out as an email group, but now
we have a full professionally designed web site, email community, and
sponsor a special camp for young people each summer with chronic lung
disease called Camp Mosquito. It is truly my pride and joy. We all have so
much fun. It's open to young people 7 through college age but
Older " Peer Councilor's" can attend to be role models for the younger
campers.

We go swimming, have daily trips to the water park, hike, play games, watch
movies, play paint ball, do the rope courses, tie dye t-shirts, airbrushing,
various crafts, group pics, etc.

We do have infection control measures and are happy to report there has
never been one instance of bacteria transfer, and we keep all sputum results
to cross check.

Some of our campers need lots of meds, oxygen, tube feeds, CPT, and
treatments, while other don't need any meds or CPT at all.We can do
aggressive CPT both via Vest and manually. Some of our campers take a "CPT
Vacation " and switch to inhalers for the week, since they stay so active.

Anyways, that's my introduction. Take a tour of the web site and think about
camp. We'd love to have new faces there this summer. For parents of
youngsters and teens, really consider sending your child. As an adult, I
wish I had met a lot of kids and teens like myself. I was picked on and no
one really understood. My hubby went to Duke's Children's Camp his entire
life and made friends he still has and its been about 15 yrs since his last
summer. Please think about it ! ! ! We have never had a cross infection
issue and do have parents who can support this claim.Camp is July 15-19th.
www.younglung.org
"Click on the Camp Mosquito Link"



Sincerely,
Rebecca R. Snyder
Director
YOUNGLUNG Suppport Services, Inc.
1721 Anniston Rd#112
Jacksonville, Florida 32246
www.younglung.org


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