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Re: [Cystic Fibrosis Support] New to group/water and salt   Message List  
Reply | Forward Message #1376 of 1698 |
Re: [Cystic Fibrosis Support] New to group/water and salt

Hi Carol,
Welcome to the group!
I have had this experience, but only after I've been on IV saline for awhile
(like with antibiotics or in the hospital). I, too, drink a lot of water and
haven't found this to be the case with flavored water, but I've never tried
vitamin water. Maybe it's one of the vitamins/minerals they use? That's the only
thing I can think of.

Emily M. DeArdo (614) 216-4766
"Where is human nature so weak as in a bookstore?" --Henry Ward Beecher


----- Original Message ----
From: Carol CLIFFORD <cliffshark@...>
To: cysticfibrosissupport@yahoogroups.com
Sent: Friday, January 26, 2007 1:38:59 PM
Subject: [Cystic Fibrosis Support] New to group/water and salt













Hi,



I am new to this group as of today. I was diagnosed with CF after my first

child was born, at the age of 31. I am lucky in the fact that obviously I

have a very mild case.



I now have 3 children and all in all am pretty healthy, although my

lifestyle is not very healthy.



I decided I was going to start trying to get healthier in "baby steps". My

first thing was to drink water. I basically live on coffee. Anyway, after

just a day of drinking water I found that my mouth tasted like I had been

drinking ocean water. I have had no luck finding out what this could be

from and have since just started drinking "vitamin water", which got rid of

the salt taste, but I find it makes me kind of thirsty and bloated.



Has anyone ever experienced anything like this?



I haven't look in the archives yet, which I probably should have done before

I posted this, but I am going to look now.



Thanks to anyone who can give me some insight on this.



Carol



Life is an adventure, not a charted course...














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Sun Jan 28, 2007 4:43 am

emdeardo
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Forward
Message #1376 of 1698 |
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Hey Carol, you weren't diagnosed with cf until you were 31? Wowsers I never heard of that. My sister had cystic fibrosis and lived till she was 34 back in...
Barbara-Anne
batgirl_28_29
Offline Send Email
Jan 27, 2007
11:56 pm

Hi Carol, Welcome to the group! I have had this experience, but only after I've been on IV saline for awhile (like with antibiotics or in the hospital). I,...
Emily DeArdo
emdeardo
Offline Send Email
Jan 28, 2007
4:44 am

Well so far so good as far as the vitamin water. I was wondering if maybe I was just clearing too much salt out of my body. I guess I should talk to the...
Carol CLIFFORD
clifford_carol
Offline Send Email
Jan 28, 2007
1:18 pm

Hi, When I was diagnosed at Mass General they told me I was the oldest they had seen as far as first diagnosis. I know I am pretty lucky to not be sick like...
Carol CLIFFORD
clifford_carol
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Jan 28, 2007
1:22 pm

Thanks Carol, so yours is a mild form that's not too bad. Do you mean like diet and stuff? ... From: Carol CLIFFORD To: cysticfibrosissupport@yahoogroups.com ...
Barbara-Anne
batgirl_28_29
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Jan 28, 2007
10:14 pm

Hi Barbara-Anne, I mean the whole picture. I really don't have any major pulmonary or GI symptoms. I guess recently (11 years ago) they have found adults...
Carol CLIFFORD
clifford_carol
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Jan 29, 2007
1:34 am

Hey Carol, well if you feel physically ill then it's good you joined us especially since you have cf. Thank God it's a mild case that's for sure. I have only...
Barbara-Anne
batgirl_28_29
Offline Send Email
Jan 30, 2007
2:55 am
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