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Re: [Cystic Fibrosis Support] New to group/water and salt   Message List  
Reply | Forward Message #1374 of 1698 |
Hey Carol,
you weren't diagnosed with cf until you were 31? Wowsers I never heard of that.
My sister had cystic fibrosis and lived till she was 34 back in 1998. That's
why
I'm in the group. I hope you are doing good.


----- Original Message -----
From: Carol CLIFFORD
To: cysticfibrosissupport@yahoogroups.com
Sent: 1/27/2007 3:53:29 PM
Subject: [Cystic Fibrosis Support] New to group/water and salt


Hi,

I am new to this group as of today. I was diagnosed with CF after my first
child was born, at the age of 31. I am lucky in the fact that obviously I
have a very mild case.

I now have 3 children and all in all am pretty healthy, although my
lifestyle is not very healthy.

I decided I was going to start trying to get healthier in "baby steps". My
first thing was to drink water. I basically live on coffee. Anyway, after
just a day of drinking water I found that my mouth tasted like I had been
drinking ocean water. I have had no luck finding out what this could be
from and have since just started drinking "vitamin water", which got rid of
the salt taste, but I find it makes me kind of thirsty and bloated.

Has anyone ever experienced anything like this?

I haven't look in the archives yet, which I probably should have done before
I posted this, but I am going to look now.

Thanks to anyone who can give me some insight on this.

Carol

Life is an adventure, not a charted course...




[Non-text portions of this message have been removed]




Sat Jan 27, 2007 2:58 pm

batgirl_28_29
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Message #1374 of 1698 |
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Hey Carol, you weren't diagnosed with cf until you were 31? Wowsers I never heard of that. My sister had cystic fibrosis and lived till she was 34 back in...
Barbara-Anne
batgirl_28_29
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Jan 27, 2007
11:56 pm

Hi Carol, Welcome to the group! I have had this experience, but only after I've been on IV saline for awhile (like with antibiotics or in the hospital). I,...
Emily DeArdo
emdeardo
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Jan 28, 2007
4:44 am

Well so far so good as far as the vitamin water. I was wondering if maybe I was just clearing too much salt out of my body. I guess I should talk to the...
Carol CLIFFORD
clifford_carol
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Jan 28, 2007
1:18 pm

Hi, When I was diagnosed at Mass General they told me I was the oldest they had seen as far as first diagnosis. I know I am pretty lucky to not be sick like...
Carol CLIFFORD
clifford_carol
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Jan 28, 2007
1:22 pm

Thanks Carol, so yours is a mild form that's not too bad. Do you mean like diet and stuff? ... From: Carol CLIFFORD To: cysticfibrosissupport@yahoogroups.com ...
Barbara-Anne
batgirl_28_29
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Jan 28, 2007
10:14 pm

Hi Barbara-Anne, I mean the whole picture. I really don't have any major pulmonary or GI symptoms. I guess recently (11 years ago) they have found adults...
Carol CLIFFORD
clifford_carol
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Jan 29, 2007
1:34 am

Hey Carol, well if you feel physically ill then it's good you joined us especially since you have cf. Thank God it's a mild case that's for sure. I have only...
Barbara-Anne
batgirl_28_29
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Jan 30, 2007
2:55 am
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