Danielle,
My advise to you is to just have the sweat test done, so you know for sure. Not
all mutations of CF are the same, and many babies won't show any signs until
they are 2 yrs or older. If you don't have the test done now, and she was to
start developing signs later in life, it could take a while for dr's to figure
out what is causing the problems. My son Tristan was diagnosed 4 days before I
delivered him. We were lucky enough to be able to find out in advance, and the
dr's were ready for anything. There has never been anyone in my husband's
family that was known to have had CF, but as it turns out, it's in the blood
line somewhere. What you could do is both you and your husband get tested. If
one of you is not a carrier, then your daughter cannot have CF, but may just be
a carrier. At least this way you don't have to put your new baby through
anything, but I think it would be more beneficial for you to just have the sweat
test done. It is very non-invasive. There are no needles or blood or anything,
and then you know for sure. I will be keeping my fingers crossed that whatever
you decide to do, the results are negative for CF. I can tell you that my son
is one of the happiest babies that I've ever seen. This disease can make life
far from normal, and this may sound weird, but I would have my life no other
way. Having a baby truly does change your life, but having a special baby makes
you appreciate life. Visit Tristan's
website:www.caringbridge.org/visit/tristan. I set this up soon after Tristan
was born. It's been one way for me to keep family and friends that don't live
close to us, up to date on his progress. Good luck with whatever you decide on.

Deb
----- Original Message -----
From: Danielle Rose Quigley
To: cysticfibrosissupport@yahoogroups.com
Sent: Friday, January 19, 2007 6:40 PM
Subject: [Cystic Fibrosis Support] 3 week old with positive screening!


Hello,
I found this group in hopes of some answers. My daughter was born
Dec.27,2006. Her heel stick test has screened a positive result for
one CF mutation. I have to have a sweat test done on her. As of now-
She is almost a month old and has no symptoms- She does not taste
salty, she has normal stools and she has gained two pounds and two
inches since birth. I guess I am just unsure of the chances of her not
having CF. There is NO history of it on either side, However my sister
is a carrier for it- so I suppose I am as well. I guess my question is
this- Is there any chance that she is just a carrier herself??





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