Hi J'Ann,
It's been awhile since I've gone to the site for "The Breathing Room." My
daughter does go there once in awhile herself. There is another site for
pre/post transplant that is called SECONDWIND. This site is for anyone who is
thinking about having a transplant, or has had a transplant.....but it's not
specifically CF only but many different diseases as well that cause a person to
need a single or double lung transplant. Oh, there is a book also called *The
Lung Transplant Handbook* it has lots of information about all the transplant
centers, about the medications one takes after transplant, it has information
for the person who is planning to have a transplant....lots of pre-transplant
preparation information in it. The author is Karen Couture. I believe she is
still a part of the Secondwind support group as well.
Wishing you and Malachis the very best. Keep us updated as you can. We are
always here! :-)
Love & Hugs
Cloyce
mom of Tara 23 w/cf, tx'd 5-27-99, diabetes
author of:Inner Strength, One Family's Experience with Cystic Fibrosis
www.trafford.com/robots/04-0971.html
----- Original Message -----
From: cherubangelov
To: cysticfibrosissupport@yahoogroups.com
Sent: Friday, June 02, 2006 5:42 PM
Subject: [Cystic Fibrosis Support] GOD BLESS!!!you&daughterCLOYCE/MALACHI &MOM
.THANKS BUNCH!!
--- In cysticfibrosissupport@yahoogroups.com, "Cloyce Jones"
<cj1000193@...> wrote:
>SORRY ON COMMUNITY PC & MUST LEAVE..BE BACK LATER B4 10P .HAV U SAW
BREATHING RM.COM?!!!..>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
> J'Ann, /MISSOURI/MALACHIS BIRTHDAY SEPT 25!!!BIG 30!!!!EVERY
BIRTHDAY A BLESSING!!!HOPE YOUR DAUGHTER WILL EMAIL ME ALSO!!
MALACHIS
IS ;;;;;romeoboat@...>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
SPONSORED LINKS Cystic fibrosis Cystic fibrosis foundation
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