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god bless you&daughterCLOYCE/MALACHI SAW ST LOUIS CF DR!!   Message List  
Reply | Forward Message #1216 of 1698 |
GOD BLESS!!!you&daughterCLOYCE/MALACHI &MOM .THANKS BUNCH!!

Hi J'Ann,
It's been awhile since I've gone to the site for "The Breathing Room." My
daughter does go there once in awhile herself. There is another site for
pre/post transplant that is called SECONDWIND. This site is for anyone who is
thinking about having a transplant, or has had a transplant.....but it's not
specifically CF only but many different diseases as well that cause a person to
need a single or double lung transplant. Oh, there is a book also called *The
Lung Transplant Handbook* it has lots of information about all the transplant
centers, about the medications one takes after transplant, it has information
for the person who is planning to have a transplant....lots of pre-transplant
preparation information in it. The author is Karen Couture. I believe she is
still a part of the Secondwind support group as well.

Wishing you and Malachis the very best. Keep us updated as you can. We are
always here! :-)

Love & Hugs
Cloyce
mom of Tara 23 w/cf, tx'd 5-27-99, diabetes
author of:Inner Strength, One Family's Experience with Cystic Fibrosis
www.trafford.com/robots/04-0971.html
----- Original Message -----
From: cherubangelov
To: cysticfibrosissupport@yahoogroups.com
Sent: Friday, June 02, 2006 5:42 PM
Subject: [Cystic Fibrosis Support] GOD BLESS!!!you&daughterCLOYCE/MALACHI &MOM
.THANKS BUNCH!!


--- In cysticfibrosissupport@yahoogroups.com, "Cloyce Jones"
<cj1000193@...> wrote:
>SORRY ON COMMUNITY PC & MUST LEAVE..BE BACK LATER B4 10P .HAV U SAW
BREATHING RM.COM?!!!..>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
> J'Ann, /MISSOURI/MALACHIS BIRTHDAY SEPT 25!!!BIG 30!!!!EVERY
BIRTHDAY A BLESSING!!!HOPE YOUR DAUGHTER WILL EMAIL ME ALSO!!
MALACHIS
IS ;;;;;romeoboat@...>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>






SPONSORED LINKS Cystic fibrosis Cystic fibrosis foundation


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Sat Jun 3, 2006 3:48 pm

cloyce58
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Forward
Message #1216 of 1698 |
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SAYS HE MUST CLEAN UP LOT BACTERIA 1ST!!ALSO WEANIN HIM OFF PREDINASONE/DRS HAD HIM ON TOOOOOO LONG!!!NO TRANSPLANT YET,MAYBE,NEAR FUTURE!! THE NEW DR WANTED...
cherubangelov
Offline Send Email
Jun 1, 2006
12:08 am

J'Ann, Okay, I understand about the prednisone taper.....but I thought I would send you this website my friend has. It's about lung transplant and is for...
Cloyce Jones
cloyce58
Offline Send Email
Jun 1, 2006
5:11 am

... BREATHING RM.COM?!!!..>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> ... BIRTHDAY A BLESSING!!!HOPE YOUR DAUGHTER WILL EMAIL ME ALSO!! MALACHIS IS...
cherubangelov
Offline Send Email
Jun 3, 2006
12:42 am

Hi J'Ann, It's been awhile since I've gone to the site for "The Breathing Room." My daughter does go there once in awhile herself. There is another site for...
Cloyce Jones
cloyce58
Offline Send Email
Jun 3, 2006
4:00 pm
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