Hi Sue, It's so good to see you and Valerie are back with us!!! Oh I do hope
that your back pain has been cured. You sure have been missed! :-) Do you know
what Valarie's PFT's are now? Were they up in the 80's again or was that just a
fluke? The hypertonic saline, before the doctor took her off of it for excessive
coughing, was she doing this daily since starting it? It's not done off and on
like the Tobi? If it's causing excessive coughing you would think doing it maybe
every other day, or every few days would be better. Not over irritating her
lungs. But what do I know?! lol Wow, that is a scary thought Valerie only having
$30,000 left for her hospital coverage.....oh yes, that is definitely something
the social worker is going to jump on and check into. And I don't blame you for
wanting it in writing after the insurance told the social worker $275,000 was
left. That is a huge difference.....I think if I was you I would call them back
myself and see if they give you the same answer as the social worker.....then
ask yourself to have that in writing for your files! Hope everything goes
through for Valerie to receive Medicaid/SSI....that sure would help relieve some
of the financial worries.

Take care Sue, and hope Valerie was able to come home for the game Saturday :-)
Love & Hugs
Cloyce
mom of Tara 23 w/cf, tx'd 5-27-99, diabetes
author of:Inner Strength, One Family's Experience with Cystic Fibrosis
www.trafford.com/robots/04-0971.html

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