Dear CF community:



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Robyn is a gifted 17-year-old student and musician who focuses on keeping
herself healthy by managing her chronic disease cystic fibrosis, while still
pursuing the activities she loves. Diagnosed with CF since birth, Robyn has
learned to work around the limitations of the disease with lots of
determination and the help of her family and CF care team.

Robyn has always been a fighter. For 15 years, Robyn endured tube feedings,
which are a way of providing nutritional support with a nutrient dense
liquid delivered through a tube directly into the stomach. Robyn
accomplished a major personal victory when she was able to eat enough food
orally to be able to remove her gastronomy feed tube, which happened in
January of this year!

In addition to the time-consuming CF regimen that she undertakes daily,
Robyn stays very busy with school, music and community service. She began
playing the violin in first grade and continues to play in her high school's
orchestra. Robyn is also heavily involved in community service, working on
diverse programs, including "Nothing But Nets," an organization to help
prevent the spread of malaria, and volunteering at her local battered
woman's shelter. Next fall, Robyn plans on attending the University of
California, Davis where she will major in nutritional science.

Heroes of Hope Living with CF recognizes individuals with cystic fibrosis
(CF) who live full and productive lives while managing their healthcare
needs. To date, Heroes of Hope has honored more than 48 inspiring
individuals with CF in over 35 states. Heroes of Hope recipients inspire
others through their outstanding accomplishments, dedication to health
maintenance and contributions to their communities.



Learn more about Robyn


Click here to access Robyn's personal Heroes of Hope Web page.
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www.heroesofhope.com


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Please note: The information contained in these Heroes of Hope Living with
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of Hope recipient was honored.

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