Hi. I wanted to introduce myself. I'm Laura. My daughter, who is 6, was diagnosed with CVS last Oct. She has had episodes for 4 years, but we always thought...
Hello and Welcome. My name is Ann and my son, Sam, (now 6) has been dealing with CVS for 3 years. I was very thankful to have found this site. My husband...
Hi Laura, Read through all the previous correspondence for the past year or so and you will get a wealth in great information and hopefully some help. Please...
Hello all, I am 29 and have been suffering from CVS for the last 11 years. But I only found out that what CVS was last year and was diagnosed. Only after years...
I feel your pain. I too have had CVS for about 13 years and migraines almost daily. I have four boys and the youngest also has CVS so my life is full of stress...
Hi lydia, I absolutely know your pain. I have had cvs for 22 years, since I was 11. I was always afraid to do things such as go on trips or venture off to...
You certainly aren't alone Brewster. My son is 28 and lives at home because of CVS. He moved out and shared a place with other friends about a year after...
Hi Lydia, I completely can relate to how you are feeling, well actually not me, but my 29 year old boyfriend. He was been sick with CVS for going on 5-6...
Does anyone feel like the more tired you are the more likely an episode will occur? Also do you feel like you are more tired than the average person? I feel...
i have noticed with my husband that if he does not go to bed at an early hour that he doesn't feel good later in the night. your body is working way harder...
Lack of sleep is definitely a trigger for my 29 year old boyfriend too. If he doesn't get enough sleep or stays up too late (we like playing poker!), he is...
Your observations are right on. When my daughter consulted with Dr. Olden at the Mayo Clinic in Scottsdale he acknowledged that lack of adequate sleep could...
so my husband is sick again. he was just sick saturday for a good 30 hours. just when you think the medicines might be helping things go right back to square...
Hello, I have some questions that I am hoping some people more experienced can help me with. My daughter Alyson is 5 years old. This past weekend she had her...
Hi Sandra , I feel your pain , believe me....my girl Sarah is 8 now , has had CVS since she was 6 mos old , currently have 108 episodes logged in her diary ,...
Thanks Vicki, Alyson goes thru quite a bit of that too - being the youngest of 3 girls, it has not been easy. I am lately getting into her missing out on...
Unfortunately , the family has to deal with the illness as well as everyone else...we have the family medical leave act for our work ...I am home today with...
Hi Sandra and Vicki, My first thought as you write is that you both need to be seeing a CVS specialist. Sandra, your current physician doesn't appear to...
I'm sorry you are going through this too! My son is almost 5 and been going through this since infancy-- We also had a number of tests-- including ones you...
Thank you for all the suggestions. As for diet - it is hard to get anything down Alyson even when she is not symptomatic. She is an extreemly little girl who...
Don't go to that doctor! I would not put my child through any of that. There is NO test for CVS is is diagnosed through documentation! Go to a different...
Look at the list of CVS specialists on the CVS board of directors and find one close to you. I know there is someone in Chicago at the Childrens Hospital. As...
Sorry if this is rambling but I don't want to leave out anything. My daughter is 5 and since Friday - started a tummy ache with headache pain too. She wakes...
I myself also have CVS along with my 5 year old. I too am very tiny and don't eat much. One thing I do and I give my son is instant breakfast. I do this when...
CVS is exhibited in all kinds of forms for different people. Since your daughter is 5 she might have a hard time discerning her own symptomology. I would...
Just wanted to add that I understand one of the best CVS specialists is in Columbia MO (found this out after moving from Kansas City and then having my son...
Sandra - I am so glad you shared your story. The Dr. response to you makes me so angry! I have had both of my kiddos close to death because the Dr. would not...
hi- a great doctor in columbia missouri is Dr. Fleisher. he is retired but still sees patients- i think he only sees patients with cvs. he is amazing and so...
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