Yoga would be great! My 32 yr old daughter who has CVS, but has been symptom free for over a yr does yoga religiously. It builds beautiful bodies, which...
My sister in law just finished med school for Chinese Medicine. There are several treatments and methods that are helpful in controlling CVS episodes that she...
Have not tried it but let me know if it works. I am interested in anything that will help. lsimons90 <lsimons90@...> wrote: I was curious if anybody...
Any specific treatments/methods you can share with us? Lisa ... There are ... episodes ... as stress ... beautiful ... to stay ... easily. ... Service....
That's great to hear. Did she take up yoga to try to help manage her CVS, or was she already doing it previous to the initial onset, or did she take it up in...
She sent me some herbs that you light and hold underneath the feet. There are other practices that she was going to recommend, but my daughter finally stopped...
She took up yoga to manage her stress and for exercise. She also focused on having a minimum of 8 hrs of sleep, freguent low fat, high protein/high carb...
Hi all. I don't really know what to say. It is a relief to see that I am not alone. I'm 29, live in the big city of Austin, TX. and people look at me like I'm...
To start, welcome to the group and you are not alone. We are all in this together. May i ask what medications you have tried? I have some ideas that might help...
Iv'e tried every medication you can imagine. The only relief I have found is Marinol&Ativan. It helps....most times. If that can do it I can choose to try to...
There are so many other things out there, some you may have tried. Topamax, Zolfran, beta blockers to stop the episodes. Marinol is not one I have heard of but...
do you get any help at the emergency room? Or just hydration? I know CVS has some sort of hand out to take to the emergency room with you that let's them know...
I get Darvocet also, but if the attack is really bad, I go to the ER and they give me an IV w/potassium chloride & 75-Demoral/50-Phenegran mix. It helps a ...
I get Darvocet also, but if the attack is really bad, I go to the ER and they give me an IV w/potassium chloride & 75-Demoral/50-Phenegran mix. It helps a ...
http://www.cvsaonline.org/diseaseresearchinfomedicalinfo.htm "Emperic Guidelines"... Amber Matthews <amatthews10@...> wrote: where can we get the handout...
somewhere this message has been posted 4 times, but just not on the right place! anyways, my name is robin and my husband dave has had cvs for 11 years now. we...
Hello everyone. We will be taking a trip to Disneyland this coming weekend. I was wondering if anyone has any helpful hints for the trip? Last year when we...
My recommendation would be to keep him on Zofran the whole time. Also watch the high fat fast food and minimize that. Make sure he is not overtired or...
Hi Dale, I can not believe that your daughter has been episode free for 2 years- fantastic!!! In fact, my boyfriend (who has CVS) was just saying how he would...
I would reccomend keeping the zofran and Ativan in the system at ALL times as to not even have to deal with an episode. You deserve to have fun and you don't...
I am in the medical field and have done hundreds of hours of research on this. Let me know if you do not fins helpful tips available and I can see what I can...
Thank You for your suggestions. However, fortunately (or unfortunately for that matter) Sam is not taking those meds. He is only on periactin and miralax....
Zofran is a powerful "anti-emetic" (anti nausea). If taken prior to an event it can prevent or minimize the event. You should be on this since it is the only...
No my son has not tried this drug. His CVS, thankfully, has not been too bad. The Periactin generally does the trick for him. However, I will talk to his...
His doctor put him on Miralax as needed b/c she thought his bowels may be hitting the bottom of his stomach which could have been causing the episodes. We...
Stress is a huge trigger for most CVS patients, so I image for your son as well. I can't speak for excitement, but sometimes being excited can trigger other...
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