In a few days we return to see our specialist regarding my 4 1/2 year old son's CVS-- Like a number of children on the list, my son cycles regularly 5-6 weeks-...
I think we have spoken before about the similarity of our kids cycles...Sarah cycles every 4 and a half weeks for what used to be 3 days episodes and lately...
Vicki Tripido <mothrotwins@...> wrote: We havent tried the supplements but did try the prescription carnitore. Nothing has even made a dent in it or...
My son has had the disolving Zofran since he was four. They are 4 mg. The other meds I heard that work are Ativan and Topomax. You can ask about those. Best of...
I had a severe vomiting disorder as a child. I was diagnosed with Abdominal Epilepsy. I was put on Phenobarbital and the episodes stopped by age 9. At age 22,...
I had a severe vomiting disorder as a child. I was diagnosed with Abdominal Epilepsy. I was put on Phenobarbital and the episodes stopped by age 9. At age 22,...
Thank you for sharing. I wouldlovveto know more. my son is five and have had this for four years. He takes Zofran. Tell me where you live and I can do some...
Hi Amber. I am in Houston. I have found a doctor that treats Abdominal Epilepsy. I have to get on county health care before being referred. A few years ago, I ...
Welcome to the board. I'm sorry to hear you are so ill. Do you have CVS, and Abdominal epilepsy? CVS is not necessarily a GI disorder. The dysfunction is not...
Drew, welcome to the group and thanks for the imput. Body temp does seems to change before and during episodes. I'd be interested to know what Dr. Fleicher...
A/E is the same as CVS, but treated by a neurologist with anti - convulsants. Both originate in the brain, but GI doctors use anti depressants.I was diagnosed ...
Do you have any documents that say CVS is the same as A/E? In fact when I research on the web, I can't find anything that says this. Can you explain a little...
Thanks everyone. I am still getting the hang of this site. Are there really this many people with this condition? 186 registered on here??? Wow, and for...
Hi Susan. I have researched CVS and A/E extensively for ten years. I was diagnosed with A/E in infancy and at 22 yrs of age. My diagnosis came after ten days...
Many people with CVS have reported taking hot baths or showers to relieve nausea/pain. My son has never tried it or even thought it would do any good. Does...
The only thing that i have noticed with temperature changes is that my daughter Sarah has had episodes triggered by cold pool water at times....you could...
I have had many "triggers". Some happen every time... alcohol, high stress, always trigger it. Some foods have also, but it seems that the very foods that...
Hi Kelly. My vomiting episodes were seven days only at first. After years of going untreated, they got worse. I have lost friends and my girlfriend over this...
Susan, this is a reference that describes it a little different. I am trying to get a copy but it will take time. Here it describes cyclic vomiting as a...
Hmm...I have never heard of CVS being the same as abdominal epilepsy. My Nuerologist treats me w/ tri-cyclics for my migraines, and CVS. I have heard of...
Zonegran is an anti convulsant. It has a long half life, which is good for vomiting patients. It is a very harsh drug. There is an Epilepsy website where...
Actually, Britt, CVS is a side effect of a seizure disorder, if I have read correctly. Abdominal migraine, periodic syndrome,abdominal epilepsy are all the...
me either, I think they are different. even the symptoms are different Brittany Davis <brittdavis88@...> wrote: Hmm...I have never heard of CVS being...
Hi there, it's amber. My best friend lives in Houston and has a talk radio show out there. Keep pushing for the insurance and do NOT let anyone tell you that...
Yes, the symptoms are a bit different. My symptoms seem better suited for a CVS diagnosis, but I was first diagnosed 38 years ago, and again in 1988 with...
Yes, I know about Zonegran first hand. I would rather be in a bamboo hut in Vietnam being tortured than eat one more of those jagged little pills. ... Service....
Well even if you're not looking for love, and just a bit of fun thought I'd give you all a tip. So you can stay away from all the bullcrap fake profiles places...
georgette.murdock7819...
Jan 6, 2006 2:54 pm
821
RUNALONGANDGETFUCKED ... __________________________________________ Yahoo! DSL – Something to write home about. Just $16.99/mo. or less. dsl.yahoo.com...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
