Hi, I have had CVS for 22 years now. My life has been so hard living with this disease. My career is basically over, first wife left me with a two year old...
I remember going to the hospital and them being convinced I Was doing drugs. Wish iwas then their would be a good reason for feeling so bad. I am sorry your...
Hi Brewster, Please know that there are many of us who really understand. We are here for you and are willing to help where we can. It is awful, just plain...
Hi all, haven't been on here a while,, as with most of you my frustrations are mounting,,my daughter has CVS. She saw Dr. Li in Chicago several years ago,,...
Donna, I actually found a general practitioner who was willing to listen here in my city in California. I took in research documentation along with aa copy of...
Dear members, As I read the stories of those who suffer from CVS, my heart breaks, but praises God that my daughter did not have to fight this disease for...
Paige, You should seek out a specialist who knows about CVS. There might not be a cure but what you want to do is minimize the symptoms. Focus on that. Start...
Susan, Being able to talk to people who are going through this is a God sent. I am searching out a CVS specialist in Atlanta, but have not been lucky...yet. I...
Paige, my name is Amber and my 5 yeard old has had CVS for many years now. His episodes consist of vomitting 25 times an hour for five days every three months....
I forgot to mention, the trigger for Bradley is not food but constipation. The other medicine that is the MOST helpful out there is Ativan, ask the doctors...
Healthy Origins - coQ10 - mention that you have CVS and you might get a discount - (I think they are still giving discounts) 888-228-6650- ask for the...
Hello I can start by letting you know that there is a doctor in Columbia,Missouri and he deals with children and adults that have CVS. He is a wonderful...
Hello Everyone! My name is Brandy Florez - I am living for the present time in Laredo Texas. I having a very hard time with the school system. I have a son...
BRadny you need to find a pediatric gastroenterologist. they are the ones who generally know about it. Dont give up. call every doctor you have too. Brandy...
I don't know what the home schooling laws are in your state, but in mine (NJ) it is a lot easier! I pulled my son out of school two years ago due in part to...
Brandy, I think someone is giving you a load of @@@@! Here's a website for you: http://homeschooling.about.com/od/txlegal/ for Homeschooling in Texas. Don't...
Hello- My GI doctor has put me on zofran and ativan for my episodes but says since I usually have a migraine or one that results from vomiting, that my...
Beth, I live with migraines. They have me on Fiorect. I have tried so many meds but the one I have not tried is Topomax. it is supposed to be wonderful and...
I am a new member to this site. My daughter is now 15 years old, and began vomiting at 2 years old. However, she was only recently diagnosed in May with CVS....
Hi Lisa, Welcome. I wanted to ask if you she is using her Zofran only after the episode starts or the minute she feels a little not right? I also want to...
Hi! Thanks for responding to my message. My daughter starts the Zofran as soon as she recognizes the nausea symptom. She is so used to the feelings of what...
Hey, I have severe migraines, and CVS. A lot of times one of my migraines may trigger a CVS episode, but it's a CVS episode-not vomiting from the migraine....
My boyfriend and I went on a little two day vacation up to Northern California- of course, as soon as we get in the car, he is nauseous and tired. This soon...
First of all , your resentment is totally normal and you shouldnt feel guilty about it ....even though in your head , you KNOW that it isnt your boyfriends...
Knocking on wood, still episode free since July. Topamax I believe is 10 or 15mg daily. My son is 4 yrs old. Brought him to a neurologist after gastro said...
Kelly, Boy do I hear what you are saying and understand. I am the caregiver for my husband and it is very hard at times. There are times I want to just...
I just want to say thank you to you all for your unwaivering support. It's nice knowing that I am not alone in my feelings. You all gave wonderful advice. I...
KElly, Please dont give u[ on him. There are so many medications that can help. Tompamax has been AMAZING! Has stopped episodes for people for months that used...
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