I get odansetorn from overseas for Jamie. Works like a champ. We get it much cheaper than the name brand (zofran) since our insurance won't cover it at all...
Hi Chris, I would love you to research your resource overseas for Odansetorn. My daughter is living in Mexico and her cost per pill is $15/pill. She doesn't...
Hello everyone. I am new to this board. I have been awake since 3 am this morning when my six year old woke up vomiting and has been for the past 2.5 hours....
Hi Jennifer- Welcome to the boards. I too am in Florida. My son who will be 5 has had this for 2 yrs. He only gets an episode every 3 to 4 months. It wasnt...
Thanks Rebecca. We are in central Florida, just outside of Tampa. I am going to try to find someone closer, but if I am unsucessful, I will be emailing you...
Try Zofran for the vomiting ......in advance if possible to counteract it as it doesnt work so well once they are in full episode ....it cuts back the vomiting...
<http://overseasrxdrugs.com/> http://overseasrxdrugs.com/ is the site. Current listings: <http://overseasrxdrugs.com/html/cart/productInfo.asp?ProdId=494> ...
My daughter, who is seven now, was born disabled with a rare desease that effects the movement in her arms & legs. That isn't the worst of it. At age 3 she...
My daughter started her episodes in March of 2000, she has been en Elavil (amitriptyline) for about 10 months and has had no adverse effects, and has been...
Thanks, Beth. I appreciate your knowledgr and insight into what can sometimes seem like a nightmare for our children. I will keep the new info in mind when we...
http://www.cvsaonline.org/marketcvsamerch.htm THIS IS A PLACE WHERE YOU CAN BUY ITEMS AND IT GIVES THE MONEY TO CVS REASEARCH TO HELP ALL OUR KIDS WITH THIS...
I am so sorry you ar enot feeling well. I to think I have CVS and according to my sons doctor he said I have had it for years. The only problem, I have a...
I work in the medical field and we just had a four year old come in yesterday for a brain MRI. Doctor said she has Stomach Migraines, otherwise known as CVS. I...
Hi- I am 29 yrs. old and have had what I now believe to be CVS on the same day every month without fail for the past year. I have baffled every doctor I have...
Hi Beth, My 31 yr old daughter has CVS and saw Dr Olden at the Scottsdale, Mayo Clinic. He is very knowledgable about CSV as well as a Psychiatrist and...
Hi Beth, I am Britt, I'm 17 and have had CVS since I was a baby. One of the best things you can do is find a Doctor who knows and understands CVS who can DX...
Some of my friends have managed to meet a few nice ones off this thing (here is the place they told me: http://www.justenjoy.info/zddai , but what do...
georgette.murdock7819...
Nov 1, 2005 4:36 am
723
Hi, I am a caregiver of my husband, Dean who has CVS. He is 53 years old and has been dealing with this awful disorder since 1989. Of course at first we...
Scoutmom32, I received your email from last night however I am unable to reach you because my email replies keep bouncing back due to your email not accepting...
Scoutsmom32, My thoughts and prayers are with you and yours. Here is the information you requested. Please also visit www.cvsaonline.org and request the free...
My son has had horrible "episodes" of CVS for over a year. Within the past few months, he has tried Topamex which is an anti-migrane medication. Believe it...
has anyone with CVS ever been told they have a high level of prolactin? I think I have cvs, and the latest finding is that my prolactin level is abnormally...
A Very Big Hello to all Group members. My name is Greg and I have just joined up. I live in the UK and I have suffered with CVS since I was a boy. I am now in...
Hey Greg, and welcome to the group! My name is Brittany, I'm 17 & have CVS since I was a baby. Again, welcome to the group, I'm glad you found this. Britt ...
It's been a long time since I've been to this group. My boyfriend, 29, suffers from this syndrome. He was diagnosed in the summer, and although he is on...
Hi, Try Dr. Richard Boles at Children's Hospital Los Angeles. He's a geneticist who specializes in CVS. http://tinyurl.com/ds5n4 I use coq10 from healthy...
Also, I forgot to mention, I make sure my son eats only uncured meat. No sodium nitrates! No MSG. Check all food labels. No chocolate. We know these are his ...
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