hello my daughter is 9 and she has had this all her life. Her episodes were 1 time a year 3 days long unless she got an infection. well in Oct 04 she got an...
hello I was reading your e-mails and something caught my eye. You were talking about social delays and fine motor skills delay, occupational therapy, etc. My...
Hi imdaprincess, I'm not sure if you wanted me to respond to this. My son was able to crawl. He crawled when he was 6 months old and he did it very well. He...
I just wanted to say that since it was from my post that I had mentioned about some delays of my son that we were just diagnosed with CVS as of this past...
Hi, I just took this fun personality test and thought you'd like it, too. Take it and see how you score (you'll also get to see my score at the end): What...
Hi, I just took this fun personality test and thought you'd like it, too. Take it and see how you score (you'll also get to see my score at the end): What...
Hi, I just took this fun personality test and thought you'd like it, too. Take it and see how you score (you'll also get to see my score at the end): What...
Hillary - I am a collie. That was fun. And wow - they nailed me on the head. hehe - that was fun. I just got back from dropping off the boys at school. They...
my lil girl went thru tons of tests and a catscan was one of them. The only advice I can give to you is be strong and be very supportive and read as much as...
Does everyone have a ... Hi, welcome to the group. I am mostly a lurker here since most here have children with CVS and I am an adult (35) with CVS and my...
Rebecca, from the doctors, nutritionists and others I've spoken to many triggers are cumulative over time. One of my son's triggers seems to be yogurt. One...
Thank you for answering those questions. We just learned that Shawn is allergic to Chocolate and beef. He is going tomorrow for the ctscan of the head. If I...
My son, an adult BTW, took the LEAP test, a new type of food and some food coloring/additives allergy testing. We were hoping it would give us a definite...
I will write those down and look into them. I have gone to that site thank you. I understand about the allergies and no reaction. My other son is allergic...
Not a problem. We all feel the same way at one point or another. Life is not without its difficulties... just try to remain afloat when you find you can't...
kelly im 23 and i have had cvs for 3 yrs now lost 4 jobs due to the lack of compassiona nd understanding we want to work just cant be sresponsible. I would...
Shawn had his cat scan done on Friday and it was neg. WOOOT! I am waiting for the dr to let us know where we are to go from here. He did mention before about...
Hi! I am new to the group and boy am I glad there are other's out there suffering from the same thing. I am a mom of a little boy who is 9 1/2. He was...
I spoke to my aunt who works for the peditrician that my son goes too. Because of the Cat scan being neg. the doctor wants to do a wait and see approch....
I hate to be the one to tell you this , but really there does not seem to be much to do except to manage symptoms....there really is no cure for CVS right now...
Sorry you have had to join us here! I just wanted to let you know that there is a specialist in Columbia MO-- (a drive from Wichita- but might be worth it)-- I...
Hi Vicki- i'm sure we've communicated before---but i hadn't noticed before that our children are on the same schedule- my son's also began around 6 mos. (now...
Really strange that after I wrote the message this morning , doesnt Sarah wake up with the start of her episode....fortunately , she gets a "preday " where she...
Since my family is new to this whole thing. I have been reading all of your notes and comments. Should I be keeping track of his episodes? Also should I...
I am new too. My son is 9 1/2 and after several months of thinking it was an ulcer or that he couldn't go to the bathroom the dr. finally diagnosed him with...
Hi Sherry, Yes, definitely keep track of his episodes and possible triggers. My son has all kinds of triggers like MSG, nitrates, motion sickness, and...
Sherry, It would be helpful if your son talks with other children his age who also have CVS. Susan ... ____________________________________________________ ...
Sorry to hear you're in an episode-- we're due next week-- we also usually have a preday- with an early am vomit or two-- but the rest of the day fairly...
My son is only 3 and suffers from this dabilating syndrom. I feel that in the town I live in I can't get teh correct answers that I need to receive. WE have a...
I do not post much, I am sooooo busy...but your email caught my attention. Where do you live? We are in Richmond, IN. We drove to Chicago to see Dr. Li, but...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
