The generic version of Zofran (Odansetron, but I may be spelling it wrong) works just as well as the regular version. Unfortunately, you can't get it in the US...
Thanks to all who replied some time ago to my zofran question... The next med our dr is talking about using is elavil--- I remember one mother of a 7 year old...
Hello I had some issues and I haven't had a phone so I could not get online. I'm back and my daughter is sick as we speak. I was wondering has anyone applied...
my little girl is easily succeptable to pneumonia also, it must come with CVS. I have not applied for SSI for her though due to the fact that she is only 3. If...
My 28 year old boyfriend was just diagnosed with CVS to all of our relief-finally an answer to his pain and suffering for the 5 years. He had attacks quite...
Hi Kelly, Is your boyfriend on Elavil? How long has he been taking it, if so? Does it make him feel crummy other than just the sleepy part? Where are you...
I'm sorry you feel that you have lost your boyfriend...it is not that you have lost him it is that you have to learn how to re-adjust your expectations of life...
Hello - I am new to this site and my son has CVS. He is now 4 and has had it for 2 yrs now. The doctors are going to be doing more test to make sure nothing...
Rebecca, Welcome to the group. My son is almost 6. His CVS started when he was 3.5 years old. What you are describing about the bile, sounds like my son too ...
Susan- Thank you for the welcome. Shawn gets an episode about every 3 to 4 months. I dont know what we would do if he had it every 2 weeks. My mentioning of...
Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate "Love is just like life, it's...
Rebecca, I am still trying to figure what his triggers are. For him it is MSG, sodium nitrate, and long car rides. He won't tell me when he gets his predrome....
hello my daughter is 9 and she has had this all her life. Her episodes were 1 time a year 3 days long unless she got an infection. well in Oct 04 she got an...
hello I was reading your e-mails and something caught my eye. You were talking about social delays and fine motor skills delay, occupational therapy, etc. My...
Hi imdaprincess, I'm not sure if you wanted me to respond to this. My son was able to crawl. He crawled when he was 6 months old and he did it very well. He...
I just wanted to say that since it was from my post that I had mentioned about some delays of my son that we were just diagnosed with CVS as of this past...
Hi, I just took this fun personality test and thought you'd like it, too. Take it and see how you score (you'll also get to see my score at the end): What...
Hi, I just took this fun personality test and thought you'd like it, too. Take it and see how you score (you'll also get to see my score at the end): What...
Hi, I just took this fun personality test and thought you'd like it, too. Take it and see how you score (you'll also get to see my score at the end): What...
Hillary - I am a collie. That was fun. And wow - they nailed me on the head. hehe - that was fun. I just got back from dropping off the boys at school. They...
my lil girl went thru tons of tests and a catscan was one of them. The only advice I can give to you is be strong and be very supportive and read as much as...
Does everyone have a ... Hi, welcome to the group. I am mostly a lurker here since most here have children with CVS and I am an adult (35) with CVS and my...
Rebecca, from the doctors, nutritionists and others I've spoken to many triggers are cumulative over time. One of my son's triggers seems to be yogurt. One...
Thank you for answering those questions. We just learned that Shawn is allergic to Chocolate and beef. He is going tomorrow for the ctscan of the head. If I...
My son, an adult BTW, took the LEAP test, a new type of food and some food coloring/additives allergy testing. We were hoping it would give us a definite...
I will write those down and look into them. I have gone to that site thank you. I understand about the allergies and no reaction. My other son is allergic...
Not a problem. We all feel the same way at one point or another. Life is not without its difficulties... just try to remain afloat when you find you can't...
kelly im 23 and i have had cvs for 3 yrs now lost 4 jobs due to the lack of compassiona nd understanding we want to work just cant be sresponsible. I would...
Shawn had his cat scan done on Friday and it was neg. WOOOT! I am waiting for the dr to let us know where we are to go from here. He did mention before about...
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