I take .05 mg of clonipin and there is also clonipin wafers which go under the tounge and disolve so you dont need water i find that those work great. Use them...
The doctor is right you dont need the zofran. Takes to long to work anyways. There are 3 medications that i take as needed they are. .05 mg of clonipins 2...
I smoke marijauana to help with my symptoms. I would like to try marinol but I don't know of a doctor who will prescribe it for me, my doctor laughed at me...
Hello my name is Jennifer and I am 35 yrs old. I have had CVS for about 4 yrs I use to feel sick everyday around 2-4 in the morning after about 6 months the...
I has thought for a while this is what my son had but it took a while to get through all of the doctor to one that said this is what it was. My son is 3 almost...
Hi April, sorry to hear about your son! My daughter has CVS (5yrs old). She gets episodes like clockwork every 7wks. Prior to this, she was diagnosed with...
Hello! I just had a question, what do others on this list think about the excessive vomiting and teeth issues? I am getting increasingly concerned about my...
My 7 yr old daughter , Sarah has had CVS since she was 6 mo's old , every 5 weeks like clockwork....vomiting 40 to 50 times a day prior to Zofran which cuts it...
my little girl also has cvs and has had it since the age of 6 months. She also has problems with her teeth due to the bile. But her pediatrician says that due...
Thanks for that. I think you are right, it will be too hard for her to rinse her mouth during an episode. Imogen also sips water during the episode, which...
Interesting! I agree, at least they are the baby teeth, but you need to protect the baby teeth so that the new teeth grow in correctly, that is why I was...
my little girl will be four in October. I have my little girl drink water inbetween spells. The only teeth that have been affected so far by the cvs are her...
Thanks for this! I also have my daughter drink sips of water between vomits. I have noticed her front two teeth are not looking 100%, but am assuming she...
Jen, Zofran works best given as soon as you see symptoms that your daughter is going into a cycle. It could even abort the cycle. Possibly. I have no...
Jennifer thanks for your reply Now that I think about it my son yawns a lot to right before he gets sick. I never realy conected the two but now that you had...
Zofran has been a godsend for my son with CVS also. He's an adult and takes the 8 mg dissolvable tablet and usually takes 2 of them at a time but he's a very...
For those of you who have found zofran helpful-- do you take/give it every five hours-- or just once? We tried it one cycle- but started after vomiting began--...
You have to take the product before you are sick. It doesn't help some people at all after the vomiting begins. The limited presciption doses of 10 per month...
i am interested in this drug, is it something that you only take *during* or *before* the episode, and not as a daily preventative then? This is the time of...
For the past two years, I've been able to give my son dramamine if he hasn't taken anything else. Usually, even after the vomitting begins, if he can swallow,...
I take zofran ODT, regular oral kind, and through my porta cath, and while in the hospital. It helps some times and others, not so much. It really is just a...
MY GI doctor told me to take it as soon as my stomache feels upset because when you take it after you vomit it use to late the Zofran will help to stop the ...
I live in CA 40 miles North of San Franciso and I get a 30 day supply and I can get it every month. I have Blue Cross but they have to get a auth from my ...
Hi Jen. To clarify, when you say you get a 30 day supply that you refill every month, do you mean you get 30 zofran tablets all at one time per month? How...
One more question if you're still there. Are you getting the dissolvable zofran in a bottle? Linder [Non-text portions of this message have been removed]...
No they are pills and I keep them with me at all times. Especially when it is hot outside I start feeling sick. Jen [Non-text portions of this message have...
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