My name is Hillary Rhoades, I have a 3 year old daughter named Kylie who has been diagnosed with Cyclic Vomiting. She first started showing symptoms when she...
I am glad to see some one else that posted on here I had posted for the first time a couple of days ago and had not seen any one else responed. My son is also...
We went to see a gastroenterologist at Boston Childrens Hospital. Her name is Doctor Tully. before we were recommended to BCH we went to Maine Medical Center,...
thanks for replying my son sodium levels dropped so much one time he had seziors and that is when we got the sodium diagnoses but i realy dought that is what...
Hi All - I have DR. appointments for my kiddos at Denver Children's Hospital on May 6. I am really hoping we can figure out what is going on and get them some...
Good luck...I will as I'm sure we all will be praying for you all. mamatlc2000 <MamaTLC@...> wrote: Hi All - I have DR. appointments for my kiddos at...
Dear hillary, Hi my name is Melody and I have a 12 year old son named Wayne and he has what doctors believe to be cvs.I also had never heard of this until we...
Hi Everyone, I am the mother of a 31 yr old daughter who has suffered from CVS for approx. 5 yrs. Our life turned around when we visited a CVS specialist at...
Ann, do you remember the names of any of the doctors that your daughter saw in Scottsdale? My son is 27 and has had CVS for 5 years next October. We also...
Hi Melody and Hillary. I'm finding it very interesting that more and more children are getting diagnosed with CVS during hospital stays. It seems as though...
Yes, she saw Dr. Olden. She had Blue Cross and requested coverage to see him and was denied. After seeing him and him sending a letter they paid for his...
No, she takes only prevacid. Her doctors took her off of the Zofran, because it didnt work for her. It was hard for us to get a diagnosis for my daughter. It...
HI Deana I responded to your email. If it does not get through plesae let me know. Also please let me know if there is additional information I can send. ...
My 9 yr old daughter has had cvs since birth. She was misdiagnosed at 6 mos. They said she had reflux. By the time she was 4 she was having episodes atleast...
Good for you. You might want to try cutting out MSG (monosodium glutamate) and sodium nitrates too. That's your soups, bacon, and hotdogs, some cereals, etc. ...
My daughter has been having episodes every 4 weeks since she was 6 months old. She has been in and out of the hospital more than any toher child I know. It is...
Susan - I figured this out with my son as well (long car rides and positive stress). I also figured out if I do not give my son any dairy before a long trip,...
I still find it hard to believe that anything works to help this damned illness.....my daughter Sarah who is now 7 has had it every 5 weeks since she was 6...
Our situation is very similar! Also on 5 week schedule, with the same pre-day; full day or two or more; and one recovery day-- The longest ever between cycles...
My Daughter 2 years and 3 months has just been diagnosed with cvs. it started on her 1 birthday! But we now know what it is at least. It reoccurs every 4-6...
My daughter will vomit the first few times what she has eaten the night before but then it turns to yellow bile and that is what it stays....I am always amazed...
What is the CoQ10 anyway? What is it supposed to do ? mpizey@... wrote:Our situation is very similar! Also on 5 week schedule, with the same pre-day;...
I don't really understand what CoQ10 does-- but you can read a lot more at www.cvsaonline.org .(do a search for it). What I do know- is that a number of CVS...
Actually Vicki, I think I have it. I have these bouts where I throw up violently, get dizzy, drained and continue to throw up until I go to the hospital and...
I am the mom of a 14 year old boy who after reading some of the posts here, I'm sure has CVS. A pediatrician mentioned abdominal migraines years ago, but...
Hi All - My DS just had appointments with the Neurologist and Gastrologist. The Neurologist is leaning towards CVS. They have given him a prescription for a...
Just an FYI to think about, as you are in the "ruling out" phase. If indeed your children do have Ehlers-Danlos, I would suggest that you discuss with their...
I didn't see you mention Zofran. This anti-nausea product used the minute any feeling of "not normal" occurs has been a godsend to many. It is very expensive...
Ann - My 8yo DS has been prescribed Phenergan Suppositories. I feel so bad for the guy. I think it is humiliating but he doesn't seem to mind especially when...
