Hello, I am glad to have found this group, as through my own research, I think my daughter (almost 5yrs) has CVS. Imogen started getting headaches around...
Hi Jen and all -- I'm new to this group too, and haven't posted an intro yet- My son (3 1/2) has a VERY similar symptom picture to your daughter's current...
My Sarah is 7 now and has had CVS since she was 6 mos old , not diagnosed till she was 4 and the latest ped neurologist just happened to get a grant...
I am new to this group and to CVS. We are currently ruling out other things for my two children right now. A friend came across the main website which linked...
Now about my dd. She is now 5. We had a bad bout with an undiagnosed kidney infection when she was 3. It took over 9 months to get rid of it. After this,...
Yikes Terry. You sure have your hands full! So sorry to hear all that you and your children are going through. Hopefully you will find the right doctors to...
My Sarah is 7 now and has had CVS since she was 6 mos old , not diagnosed till she was 4 and the latest ped neurologist just happened to get a grant...
I am new to the group. My 4 year old, bradley, has been diagnosed with CVS. His first episode was in Sept of last year, that I can recall anyway. We have now...
Amber, I shove a bucket under my daughters face and grab the pen and paper. I immediately document each time she vomits, waiting for the episode to become...
This is my standard I have sent out before but I just am copying and pasting it for those who have read it before so as not to have to rewrite it again and...
Sedation is the key when you get sick. It will work better than antiemetics. Use the Zophran prior to an attack if the slightest symptom occurrs. Used...
Hi All - My 8yo ds just had an episode. I was able to catch it in time. I gave him the nose spray and phenargen. He was able to sleep through it. When he...
Hi I am a the parent of a young adult with CVS and a member of the cvsa sponsored message board. I just tripped over this forum. If you are not also reading...
Hi would just like to say a few words about this Our son Gary is 11 years old and has a severe episode about 8 week's which put's him in hospital on a drip for...
Thanks so much Ginny for that information. I have a big 27 year old son with Tourette's syndrome and CVS and would really appreciate dosage info on these two...
My information suggest a dose of -- but each individual should be treated under the care of their own physician: Carnitor 100 mg/kg/day, divided into 2 or 3...
I just pulled up an old paper about TS and CVS, if you send me your email address I will dig out the paper and zap it to you. coQ10 seems to be amazing stuff....
I forgot to say anything about the abdominal pain. If he is having the pain, he might have abdominal migraine which incluudes intense debilitating abdominal...
Not sure if cvs is what my son has sure sounds like it. We at one time thought it was this his pediationthought it might be but not sure. His last realy bad...
My name is Hillary Rhoades, I have a 3 year old daughter named Kylie who has been diagnosed with Cyclic Vomiting. She first started showing symptoms when she...
I am glad to see some one else that posted on here I had posted for the first time a couple of days ago and had not seen any one else responed. My son is also...
We went to see a gastroenterologist at Boston Childrens Hospital. Her name is Doctor Tully. before we were recommended to BCH we went to Maine Medical Center,...
thanks for replying my son sodium levels dropped so much one time he had seziors and that is when we got the sodium diagnoses but i realy dought that is what...
Hi All - I have DR. appointments for my kiddos at Denver Children's Hospital on May 6. I am really hoping we can figure out what is going on and get them some...
Good luck...I will as I'm sure we all will be praying for you all. mamatlc2000 <MamaTLC@...> wrote: Hi All - I have DR. appointments for my kiddos at...
Dear hillary, Hi my name is Melody and I have a 12 year old son named Wayne and he has what doctors believe to be cvs.I also had never heard of this until we...
Hi Everyone, I am the mother of a 31 yr old daughter who has suffered from CVS for approx. 5 yrs. Our life turned around when we visited a CVS specialist at...
Ann, do you remember the names of any of the doctors that your daughter saw in Scottsdale? My son is 27 and has had CVS for 5 years next October. We also...
Hi Melody and Hillary. I'm finding it very interesting that more and more children are getting diagnosed with CVS during hospital stays. It seems as though...
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