I think this is what I am suppose to do. So here in my message so i can start communicating with others __________________________________ Do you Yahoo!? ...
Since March of this year we have been having a battle with Amber getting sick and vomitingaccessiblyy and her cycle seem to be every 8 weeks. We have had her...
My 11 year old son Gary has once again come out of hospital yesterday after another 5 day spell.This has been his 18th vist,and with xmas just around the...
I havenīt heard you mention Zofran. This is the drug of choice to prevent episodes. Prevacid isnīt one we hear being as effective for most. Watch your...
My 7 year old already tried carntine , had no effect whatsoever which all the other meds havent worked either.....I am more convinced than ever that nothing...
We have tried most drugs even zofran,he has also had injections but none of them has been any good.His father took him to the mainland to a convention & saw ...
Yea alot of folks on cvsaonline.org have been using L-Carnitine and CoQ10v they have quite abit of research on it on the web site i have been taking...
Smoke, What's your dose for each? Are you experiencing any side effects? Let us know if your episodes decrease even further. Good to know it has been reduced...
i am at a start dose yet, if you go to www.cvsaonline.org you can read what the primary research doc sujest, i also dumped my Elavil too Smoke test'; "> ......
Have you used Zofran prior to the episode starting vs once it has started? That is the trick. Did you fly when you went to the convention? We were told by...
One of the research articles by Dr Bolin I believe recommends sedation to abort and/or decrease the intensity of episodes. I would definately tried the ativan...
Cathie, I saw that you are from PA. I'm from State College PA. Do you have CVS? I am 21, I started having episodes when I was 4 and was diagnosed when I was 8....
After 4 years of trips to the ER with ongoing bouts of vomiting my daughter was diagnosed with CVS this week. 5 days of being sick at home followed by 7 days...
The Zofran will not be helpful if started once sick. You need to start it the minute she feels nauseated. There is a protocol for sedation and IV's if sick...
My Boyfriend of 2 years has CVS. He was in a major car accident 4 years ago. Many articals I have read, have stated that injury could trigger this. Would he be...
Hi Heather, I don't want to speculate about whether the accident played a role in the onset of CVS for your boyfriend. My son suddenly began having episodes...
See if you can get a hold of Dr Fleischer att the children's hospital in Columbia, Missouri. He's been very helpful for my wife. His web site has his contact...
Jamie's experience dictates otherwise -- Zofran is effective during an episode, but it takes 15-25 minutes to take effect, so you need to keep it down that...
Zofran can be taken by children , my 7 year old has been taking it for 2 years now but it is only really effective before the episode and then only cuts the...
Zofran works great for my 14 year old, even if she is actively puking. I have learned, though, to administer her Zofran at the first sign of a stomach ache or...
She was on the Zofran through her IV at the hospital and then in pill form when she got home, we went 5 more days w/the vomiting at home and then they sent us...
How many mg's is she taking, my daughter was on 12mg at the hospital in her IV every 8 hours, and it still didn't help, I am sure it is different for each...
Keep in mind, Jamie's 26, and a bit heavy. She takes 18 mg at a time, up tow 6 pills a day, as neeeded, usually right when the nausea starts getting bad. ... ...
I think taking the Zofran a little more aggressively, such as my daughter, or Jamie, in increased dosages, helps the Zofran work better. We have had good luck...
Hi I am so glad to find this group. My daughter who is 5, has been having episodes of throwing up since birth. It started getting bad when she turned 4. She...
Hi Christina, I am glad you have found this group. Now you can start finding out some answers. My son is 5 also and has had CVS for almost 2 years. I'm still...
I am a new member searching for answers, my 14 year old son has been haveing severe episodes of vomiting since may. The Dr's cannot find out why. They have...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
