Hi all, I am new to this group and a mother of a 7 yr old daughter. I work in one of the top childrens hospitals in the country and my daughter has been...
hunny i have CVS and was just diagnosed in may and i have had it over 10 yrs mine is the same dry heaves so powerful that it was common for me to pull or...
I hope your children's hospital will be able to implement an effective treatment plan for your daughter....it is horrible to watch your child suffer through...
My 6 yr. old has had CVS since she was 6 mos old , at first we thought it was seizures , then migraines , at 4 she was finally diagnosed with CVS .....it is...
Thanks everyone for sharing your experiences. It helps to know about what others have made it through. I just got off of the phone with the Dr. and he has a...
I can't tell you how delighted I am to find this group. I am in my late fourty's and have had CVS for approx. 27 years. In my eary 20's when this started, I...
Hello Seemeetoo, Glad to meet you, I am in Detroit area too... There is a Dr. my friend is always wanting me to go to. I can get his info if you like... My...
hello my name is Chante and I am a new member. Fortunatly, my son, Layson has only had two episodes. Both times were very frightening, but I feel very blessed...
I have 6 yr old with CVS also who has episodes every 5 weeks, she is regular with them like clockwork......she also wakes up from an episode after profuse...
penicillin is every where. Some spots high level than others. You may want to check into this. If you were exposted as a child to high levels you can suffer...
In one of the articles I have,which I think was authored by Dr Boles, who is on the CVS board titled "Recommended Treatment of CVS and Potential Co-Morbid...
Have you used Zofran? Margie Cleghorn <margiecleghorn@...> wrote:Sedation/prolonged sleep is the only way to stop my daughters vomiting... it does not...
Zofran has worked for me. I have been taking it the minute I feel sick to my stomache and I have not had an episode in 1 1/2 yrs now I am sooooo happy. I do...
Hi all, My son, age 4, has CVS and autism. Of course, it started out as this strange stomach flu thing. Except, as a mom, I know what stomach flu is and this...
Hi, my son has had this since, he was 3 years old, he is now 18,and a month ago we found out what it was via internet and self diagnosis.none of our local...
Where are you located Vanessa? ... From: vanessamorehead To: cyclicvomitingsyndrome@yahoogroups.com Sent: Friday, August 27, 2004 7:28 AM Subject: [Cyclic...
The CVSA list of professional advisors includes John M Anderson, MD, professor of pediatrics- GI, University of Texas, Dallas. You might see if he will at...
Hi everyone, I am new to this group. I have an almost 5 year old son who has been through heck and back all his life with multiple problems. The biggest...
You didnt really describe what happens in your sons episodes , it is hard to tell without that info and the time of them and how long in between if it is CVS....
Well the first time was Nov. of last year. We had his birthday party things were fine, everyone was settling down and tired after the 2hr party in the...
Jenny, Are you sure he has a fever? Or is it just that his head gets really warm? I ask this because my son's head gets really warm just before he vomits but,...
I am pretty sure at least the first time he had a fever but after that you know I don't think I actually checked besides feeling him. Yes he is really really...
In a way , it doesnt really sound like CVS but it could be ......dont know why I am feeling like it isnt except that the episodes are just usually so classic...
Jenny, Like Vicki said, "keep a diary". I get a piece of paper out and list the times he throws up and what I gave him to drink.(gatorade is best - better than...
I have a diary of what and when and what he ate. I just never thought about fever except the very 1st time. He drinks only water and is just now starting to...
Hi Jenny, One more thing. Another way these doctors know if it is indeed CVS, is if the medicine (in your case periactin) actually works. Some doctors don't...
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