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Hi all my name is Smoke and i have CVS,i am a male in my late 40's and mine started when i was 37 and for 10 yrs they couldn't find out what was wrong with...
smoke thanks for sharing, im mike 33 m bmore, md recently diagnosed w cvs, my episodes are crazy and i end up hospitalized about once a month. im currnetly on...
Hi. My 8 1/2 year old son is in the process of being testing for what we think might be CVS. He's been experiencing the symptoms for about a year now -...
My 6 yr old daughter has CVS , has had it since she was 6 mos. old every month like clockwork , , she was finally diagnosed with it at age 4 by a new...
I know how frustrated and hopeless you must feel. I can't recommend the Chicago Unit, but the literature they sent me was helpful. My daughter was too old to...
I recently started using the Zofran in advance and it doesnt stop it but it does cut the vomiting back some . Sometimes she gets away with not vomiting on the...
I also am on antidepressants actually 2 different kinds for reasons not related to my CVS and it never helped that I didn't get CVS til 3 yrs ago Zofran seems...
Hello I also take Zofran and my new doctor has me taking it the minute I feel upset to my stomache. I think mine is related to stress. I don't get migraines I...
Yes, I have the migraine-like symptoms... I very rarely get a headache, but do get extreme photosensitivity and severe dizziness for the duration of my ...
I also have CVS I started taking Zofran the second I don't feel right and I have been sympton free for 1 yr now. Dont wait til your stomach hurts with me I ...
Hi everyone, it's been awhile since I posted anything, my son's episodes have spaced out to once every 3 month for the past 9 months so I've been blessed to...
My daughter Sarah is 6 and has had CVS since she was 6 mo.s old . Currently the only medicine she takes is Zofran during her once a month episode and as she...
... Not sure on this one. ... For my wife, 20-30 min. ... Just lessens the nausea, it's still there though. Like getting a shot of morphine for a broken leg --...
I am new to this group and have been so busy trying to control my daughter's cycle that I have been unable to post anything. She is doing better now, and I see...
Anne, can you think of anything that started your daughter's episodes again after a 4 year absence? That's such a shame. My 27 year old son has had CVS with...
Linda, My daughter is diagnosed with Bipolar disorder. We are not sure if htat is an accurate diagnosis, but we do know she exhibits the behaviors typical of...
Thank you so much everyone. I'm going to call my doctor this week [and hope I hear from him this month]. We are in Raleigh, North Carolina and my son has...
Its very liberating once you realize you are not alone in your struggle. ... From: cmlamkins To: cyclicvomitingsyndrome@yahoogroups.com Sent: Wednesday, June...
Well, Anne, my son has had mild Tourette Syndrome and ADDw/h all his life. He was also diagnosed with bi-polar late last year. His doctor put him on...
Sorry, I had put that last reply to you in my outbox folder because I had to run to the store. Was going to finish it when I returned only to learn that my...
Hello I have ADHD, OCD and Bipolar 2 along with CVS lucky me and I take Lamitical for my bipolar I don't know where you reside but that is not a new drug in...
Anne, My son also takes Strattera and the pharmacist told me that this type of medication starts within 2 weeks they always say if they have a side effect it...
Hi Linda, Interesting to note your son has had mild Tourette's Syndrome. My daughter also has Tourette's.... mild now... severe in the past. Many years of...
I'm not confident that the Strattera side effect takes place within a day or two, because now that my daughter is off of Strattera, she is not vomiting as...
Linda, Check with your pharmacist and let me know if there are any similarities between the medications. I would be interested in the answer. It seems a lot of...
My son is 26, Margie. His TS first presented at the age of 6 or 7 (typical). The tics were more severe when he was younger (typical) and he used clonidine to...
I have a daughter with CVS who is 6 ( she is a twin , the other doesnt have it ) but my oldest is 11 and has ADD and she started with tics when she was 6 and...
Vicki, I hear what you're saying (read what you're keying?), re "something wrong with my genetics?" I've felt a lot of guilt over that, but it doesn't do any...
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