My name is Caitlin, I used to have CVS, was dx at age 4, I had about 40 episodes between the ages of 4 and 16. Since then I have been episode free, I believe...
What medicine have you been on in the last 2 yrs? dolphins8124 <SCMB18Cait@...> wrote:My name is Caitlin, I used to have CVS, was dx at age 4, I had about ...
Caitlin, I have a 6 yr old that has had CVS every month for 3 days like clockwork since she was 6 months old....could you tell me about your episodes? We have...
I know for me I never have any warnings and don't know what causes it. I also take Zofran but since my last episode in May of last yr my doctor has me take the...
That is wonderful news. I just sent your message to my daughter who has severe CVS. The frustration for her is that her insurance is limiting her Zofran to...
Jamie (my wife, 26 years old) and I are running into the same problem, our insurance doen't know about CVS, so they limit Zofran to 36 a order ($1000 worth)....
Thanks Chris. It is always great to hear about someone getting good response to meds. I would love to hear about Jamie's medications just to see what is...
Since my 6 year old wakes up with her episodes, does anyone know if the Zofran would help at bedtime when she is well for the next morning since the amt. of...
Jamie's on Zofran and ativan when cycling. Daily is propranolol, Prilosec (OTC), Paxil, Amitryptilyne. Episodes since age 3, DIagnosed at age 5, Drugs since...
I now take Zofran and I take it the minute my stomach is a little upset my doctor says when I am already vomiting its to late it will help a little but not ...
I also had the same problem with the quanity of Zofran they only let me have 10 a month but if you can't tolerate Phenegran which is a cheaper one then they...
Hi Vicki, I haven't been to the Chicago unit bacause my daughter is almost 30 and too old for them to take as a patient, but they were kind enough to suggest...
Hi everyone, My son is 3 1/2 and has just been diagnosed with CVS. He's had 6 episodes since last summer but it's been 3 months since his last one. I know...
In a message dated 2/27/2004 7:33:25 AM Pacific Standard Time, dale2ann@... writes: the My doctor wanted me to take Zofran the minute my stomach feels...
... Not with Jamie, it just changed. More nausea, less vomiting. Depends on the individual. ... Again, depends on the individual. ... then not? From what I...
Chris, you are an example of a wonderful support system that can make all the difference in the world!! Your wife is a lucky woman and it sounds like both of...
Boy I hope it goes away I am 33 yrs old and I just was diagnosed 3 yrs ago I never had this as a child so I am praying it is gone since I haven't had a episode...
Thanks everyone, I guess I'm just going to have to sit back and see how this whole thing plays out. That's so hard as a mother. I hate not knowing. It is...
Hello everyone, Just wondering if anyone has been pregnant with CVS. What I find interesting is alot of people on here say that they have been diagnosed with...
I wondered if it would be ok to get pregnant because I am going on my 3rd yr with it and I know stress is what causes mine. I want to have a baby within 2 yrs...
Jamie and I have been researching this ourselves and most of the meds she's on are OK up till 2nd trimester. Just a thought. She cycles every 3 months, so meds...
Hi, I have had CVS, for almost seven years now, since I was 19. I wasn't diagnosed by a doctor but I knew a 13 year old girl who has it and they flew her to...
Just got back from the ped. neurologist for my 6 yr old with CVS and we are now to the point where we have exhausted all medications to try so she is on...
Just a list of some Meds I've heard work. Zofran Promethazine (Phenegran) Toradol-Imitrex combo Xanax (alprazolam) Valium(diazapam) and Pepcid combo Zoloft I...
I took Phenegran also but I couldn't function it made me really sleepy so they transfered me to Zofran it works wonders. For me antideressants and xanax ...
Hello I have had it for 3 yrs now and thought about getting pregnant but scared something will happen and it will harm my baby by reading your story I think I...
My name is Liv,Some of you have gotten messages from my mother Ann Vanlydegraf, as I have been hesitant to tell my story-when I'm well (stage 4 some Dr's call...
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