Zachary is not a new diagnosis. He has suffered for as long as I can remember. Although he has within the past year gotten a lot worse. Just recently has been...
Hi all, I don't have CVS but I have had two `vomiting bugs' and the worst one started at 11pm, stopped than started again somewhere between 12 and 1 and I was...
Hello all, my name is Peggikaye (i also have the cybernickname of Pk) I am the mother to Benjamin age 11 (12 in December). He has had trouble with vomitting...
AAAAAAAAAAAAAAK! The migraine headaches says it all... ((((HUGS)))) My n ame is Gina and I have a 4 yo girl who has been well since the end of Sept. I am...
... end of Sept. I am happy but so afraid when it returns :-( ... Ok Gina LOL ... I have read a bit that shows that it is related to migraines ..but ... IS...
We call it an *episode* and Isabella's start in the we small hours of the morning or when she wakes. The first clue is THIRST...all she wants is water. I do...
My prayers are with you and your family. Antoinette mom2tazbug <mom2tazbug@...> wrote: Hello all, my name is Peggikaye (i also have the cybernickname of...
Has anyone gone to the Chicago Hospital that has the childrens unit for CVS yet??? I am at the last resort as the medications we have tried have done nothing...
Hello my name is Jennifer and I am 33 yrs old and have had it for 2 yrs I have been hospitalized already 1 each yr but have many trips to the ER of all the ...
My prayers are with you. My son has now missed 2 episodes without any medication through some out of the box thinking. I thank god for helping him and me to...
Hi Misty, I would be really interested in hearing your alternative treatment. My 29 yr old daughter, Liv, is currently in Road Island for Thanksgiving with...
Sad to say, you can tell it's the holidays by the way this CVS listserve has come to life. At least we now know we don't suffer alone and many others know what...
In a message dated 11/28/2003 7:09:04 PM Central Standard Time, no_reply@yahoogroups.com writes: Our son's CVS is of the abdominal migraine variety and he has...
I had posted before Thanksgiving that my 6 year old had woken up with her Pre-episode day the day before the holiday as expected as she gets sick every month...
That is interesting all the medications he takes I was diagnose 2 yrs ago however I was on most of the medications that he would take already I have Bipolar 2...
((((HUGS))))) So glad to hear you made it through the holiday with no illness! Gina Vicki <mothrotwins@...> wrote: I had posted before Thanksgiving that...
Hi everyone, I joined this list in hopes of helping a friend of mine who we are certain has CVS. My name is Tracie and my friend, Michael, and I live in the...
I found this site about a month ago I was so glad to find out that I was not the only one. However the only bad thing there is no cure yet because they don't...
I have never been officially diagnosed with CVS although I know I have it because of all the symptoms and reading I've done on it. I am now 25 and have...
Anyone gone to the Chicago CVS unit , no one answers this or about any meds that really seem to work which gives me little hope that anything does......
My name is Caitlin, I used to have CVS, was dx at age 4, I had about 40 episodes between the ages of 4 and 16. Since then I have been episode free, I believe...
What medicine have you been on in the last 2 yrs? dolphins8124 <SCMB18Cait@...> wrote:My name is Caitlin, I used to have CVS, was dx at age 4, I had about ...
Caitlin, I have a 6 yr old that has had CVS every month for 3 days like clockwork since she was 6 months old....could you tell me about your episodes? We have...
I know for me I never have any warnings and don't know what causes it. I also take Zofran but since my last episode in May of last yr my doctor has me take the...
That is wonderful news. I just sent your message to my daughter who has severe CVS. The frustration for her is that her insurance is limiting her Zofran to...
Jamie (my wife, 26 years old) and I are running into the same problem, our insurance doen't know about CVS, so they limit Zofran to 36 a order ($1000 worth)....
Thanks Chris. It is always great to hear about someone getting good response to meds. I would love to hear about Jamie's medications just to see what is...
