Hi everyone, I hope everyone is feeling well today.My son Patrick,(4) has suffered from CVS,since he was 18 months old.Officially diagnosis in March of this...
(((((Wanda)))))) My Bella will be five in December. I guess I am lucky she was diagnosed so quickly...her pediatrician is awesome :-) Lastmonth she was a...
Sarah- My son has been suffering with this for years and it is a terrible thing but definately survivable.My husband and I are taking a different approach than...
Hello, Thanks for your reply's, coping with CVS is extremely difficult and knowing there's other people out there also going through this is comforting I feel...
Hi Sarah, I'm going to forward your letter to my 29 yr old daughter who has CVS. I hope you two can correspond. welshsarah18 <sarahlouise17@...> wrote: ...
Hi, my father in law, Jack, has CVS. He is 84 years old (no typo!) which is the oldest CVS case I am aware of. He has had it for about 9 years. He has taken...
Hi there Judy, We are currently working with Cranial Sacral Therapy. It's a form of massage which has no greater touch than the weight of a nickel and it is...
Looking for a doctor familiar with CVS in the Tampa-St-Pete-Brandon area in Florida. My wife is an adult suffererm had CVS since she was 3 (25 now). We're...
Hi all , I have been reading all of your stories as well as those on the official website and want to share mine for some possible input. I have a 6 yr old...
My son is also 6 years old and was finally diagnosed this last August. He was prescribed his fair share of medications as well as underwent all of the tests...
Thanks so much for sharing this information. I pray that it works and will research for use myself. Antoinette Misty Lawson <mllawson99@...> wrote: My...
Zachary is not a new diagnosis. He has suffered for as long as I can remember. Although he has within the past year gotten a lot worse. Just recently has been...
Hi all, I don't have CVS but I have had two `vomiting bugs' and the worst one started at 11pm, stopped than started again somewhere between 12 and 1 and I was...
Hello all, my name is Peggikaye (i also have the cybernickname of Pk) I am the mother to Benjamin age 11 (12 in December). He has had trouble with vomitting...
AAAAAAAAAAAAAAK! The migraine headaches says it all... ((((HUGS)))) My n ame is Gina and I have a 4 yo girl who has been well since the end of Sept. I am...
... end of Sept. I am happy but so afraid when it returns :-( ... Ok Gina LOL ... I have read a bit that shows that it is related to migraines ..but ... IS...
We call it an *episode* and Isabella's start in the we small hours of the morning or when she wakes. The first clue is THIRST...all she wants is water. I do...
My prayers are with you and your family. Antoinette mom2tazbug <mom2tazbug@...> wrote: Hello all, my name is Peggikaye (i also have the cybernickname of...
Has anyone gone to the Chicago Hospital that has the childrens unit for CVS yet??? I am at the last resort as the medications we have tried have done nothing...
Hello my name is Jennifer and I am 33 yrs old and have had it for 2 yrs I have been hospitalized already 1 each yr but have many trips to the ER of all the ...
My prayers are with you. My son has now missed 2 episodes without any medication through some out of the box thinking. I thank god for helping him and me to...
Hi Misty, I would be really interested in hearing your alternative treatment. My 29 yr old daughter, Liv, is currently in Road Island for Thanksgiving with...
Sad to say, you can tell it's the holidays by the way this CVS listserve has come to life. At least we now know we don't suffer alone and many others know what...
In a message dated 11/28/2003 7:09:04 PM Central Standard Time, no_reply@yahoogroups.com writes: Our son's CVS is of the abdominal migraine variety and he has...
I had posted before Thanksgiving that my 6 year old had woken up with her Pre-episode day the day before the holiday as expected as she gets sick every month...
That is interesting all the medications he takes I was diagnose 2 yrs ago however I was on most of the medications that he would take already I have Bipolar 2...
