Hi, My name is Toni, and my Mom is the one with CVS. It was just "diagnosed" about a year ago. She went on the internet and found out about CVS and told her...
Hello, Laura here, my son danny was just diagnosed with cvs in june. I have been looking for a place to speak with others who know of or have the disease. I...
My fouryear old daughter is currently going through tests. She has had these vomiting episodes for a couple of years now, but they have increased in intensity...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the cyclicvomitingsyndrome group. File :...
cyclicvomitingsyndrom...
Sep 17, 2003 7:07 pm
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Hi my name is Misty and my 6 year old son was just diagnosed with CVS. He has been vomitting every 6 weeks since he was a year old and the episodes can last up...
... have ... I wish that I could tell you that they find the diagnosis quick but we have been doing testing and treatments and drugs for close to 4 years and...
eeegads! Were you relieved with the diagnosis?? Has he ever been hospitalized for dehydration? My daughter is going through testys rightnow and the doc is...
cvs was one of the first things that my pediatrician mentioned, so fingers crossed...Isabella is as textbook as one can get with this Gina ... have ... I wish...
I'm so sorry that Gina's episodes come so quickly. Dehydration is a huge factor in Andrew's case and we still don't understand how it fits in. He only vomits a...
Sarah...your post was blank :-( sarah louise <sarahlouise17@...> wrote: _________________________________________________________________ Get Hotmail on...
Hello all, Sorry my last message was blank don't know what happened there. Anyway I'm 18 living in the UK and have just been recognized with having CVS the...
Hi welshsarah18, It does feel good to finally have a name to put with this horrible disorder, doesn't it? Just finding out it had a "real name", and was a...
Hi everyone, I hope everyone is feeling well today.My son Patrick,(4) has suffered from CVS,since he was 18 months old.Officially diagnosis in March of this...
(((((Wanda)))))) My Bella will be five in December. I guess I am lucky she was diagnosed so quickly...her pediatrician is awesome :-) Lastmonth she was a...
Sarah- My son has been suffering with this for years and it is a terrible thing but definately survivable.My husband and I are taking a different approach than...
Hello, Thanks for your reply's, coping with CVS is extremely difficult and knowing there's other people out there also going through this is comforting I feel...
Hi Sarah, I'm going to forward your letter to my 29 yr old daughter who has CVS. I hope you two can correspond. welshsarah18 <sarahlouise17@...> wrote: ...
Hi, my father in law, Jack, has CVS. He is 84 years old (no typo!) which is the oldest CVS case I am aware of. He has had it for about 9 years. He has taken...
Hi there Judy, We are currently working with Cranial Sacral Therapy. It's a form of massage which has no greater touch than the weight of a nickel and it is...
Looking for a doctor familiar with CVS in the Tampa-St-Pete-Brandon area in Florida. My wife is an adult suffererm had CVS since she was 3 (25 now). We're...
Hi all , I have been reading all of your stories as well as those on the official website and want to share mine for some possible input. I have a 6 yr old...
My son is also 6 years old and was finally diagnosed this last August. He was prescribed his fair share of medications as well as underwent all of the tests...
Thanks so much for sharing this information. I pray that it works and will research for use myself. Antoinette Misty Lawson <mllawson99@...> wrote: My...
Zachary is not a new diagnosis. He has suffered for as long as I can remember. Although he has within the past year gotten a lot worse. Just recently has been...
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