Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday.  He is indeed

a very kind and very knowledgeable man.  He had just returned from Chicago where

he met with 4 other CVS specialists.  He mentioned that he also recently spoke

to a group of 145 gastro doctors and only a couple of them had even heard of

cvs.  Sad, isn't it?



The long and short of our meeting - our son definitely has cvs, which was no

surprise to us.  But it did give us a sense of relief to have him tell us that

so much of what he experiences is part of cvs. Dr. Feldman considers stress is a

major contributor to it.  With our son having Tourettes syndrome, stress is part

of his make-up.



One issue Dr. Feldman brought up early on was pot use.  When my son said he did

smoke at least once a day on a regular basis for anxiety as well as nausea, Dr.

Feldman suggested that the effects of pot could begin to cause the very symptoms

it's being taken to avoid.  He asked my son if he would be willing to stop using

pot for 6 weeks to rule it out as a cause of his (at least) weekly abdominal

migraine episodes and prescribed klonopin wafers to use while he's weaning

himself off pot. My son agreed to abstain until he sees Dr. Feldman again in 6

weeks. He smoked the last of his pot last Tuesday and while he has had to take

zofran for nausea almost daily during the past week, he has not had any

abdominal pain or vomiting. I would say that's pretty remarkable for him.  I

don't know if the nausea and anxiety lessen somewhat as time goes by with

continued abstinence. Hailey or Mary do either of you know?



Another thing that came up at the meeting was the use of suboxone as a pain

management medication.  My son has been using it for a number of years now since

getting rebound from Stadol NS.  Dr. Feldman was interested in how well it

worked.  It works pretty well a lot of the time.  And even when pain breaks

through, it prevents visits to the ER.



Did anyone watch Anderson Cooper 360 last night?  He's had a series all week

about legalizing pot but last night's program had 2 brief interviews. One with

Melissa Etherege who used pot during her chemo treatment 5 years ago and still

uses it. She said it was wonderful for her cancer needs. The other was an

unknown Bipolar woman who used an unlimited amount of medical pot for anxiety.

She said that while the pot made her feel better for the first few years, by the

3rd year of unlimited use, the pot made her anxiety and depression worse and she

became hooked on it. Something then was said rather quickly - that pot worked

well for physical ailments with symptoms like nausea and pain but cauld cause

extended neurobiological problems for people with mental disorders. I was

waiting for something to be mentioned about cannabis toxicity but it never came

up.



So there you go. My son really misses it but is staying off the pot, at least

for now.  Thank you, Tina, for recommending Dr. Feldman.  We had never heard of

him before and had no idea he shared the office at Cedars with Dr. Fleisher at

one time.



I'll give updates as times goes on.



Linda



[Non-text portions of this message have been removed]

Linda I am so happy that you got to speak to Dr. Feldman and that he was

able to help!



He recommended that I try stopping the pot use as well - but when I did it

was worse than when I was smoking it therefore he said I should/could go

back to smoking it since it was not the cause of any of my symptoms.



It is extremely sad how few Gastro Dr's have NEVER heard of CVS - I wish

there were more that could be done to familiarize some of them at least with

the symptoms and such.



I hope that all turns out well for you and your son!!



Tina





-------Original Message-------



From: Linda Piersma

Date: 6/16/2009 5:39:59 PM

To: cyclicvomitingsyndrome@yahoogroups.com

Subject: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman









Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is

indeed a very kind and very knowledgeable man. He had just returned from

Chicago where he met with 4 other CVS specialists. He mentioned that he also

recently spoke to a group of 145 gastro doctors and only a couple of them

had even heard of cvs. Sad, isn't it?



The long and short of our meeting - our son definitely has cvs, which was no

surprise to us. But it did give us a sense of relief to have him tell us

that so much of what he experiences is part of cvs. Dr. Feldman considers

stress is a major contributor to it. With our son having Tourettes syndrome,

stress is part of his make-up.



One issue Dr. Feldman brought up early on was pot use. When my son said he

did smoke at least once a day on a regular basis for anxiety as well as

nausea, Dr. Feldman suggested that the effects of pot could begin to cause

the very symptoms it's being taken to avoid. He asked my son if he would be

willing to stop using pot for 6 weeks to rule it out as a cause of his (at

least) weekly abdominal migraine episodes and prescribed klonopin wafers to

use while he's weaning himself off pot. My son agreed to abstain until he

sees Dr. Feldman again in 6 weeks. He smoked the last of his pot last

Tuesday and while he has had to take zofran for nausea almost daily during

the past week, he has not had any abdominal pain or vomiting. I would say

that's pretty remarkable for him. I don't know if the nausea and anxiety

lessen somewhat as time goes by with continued abstinence. Hailey or Mary do

either of you know?



Another thing that came up at the meeting was the use of suboxone as a pain

management medication. My son has been using it for a number of years now

since getting rebound from Stadol NS. Dr. Feldman was interested in how well

it worked. It works pretty well a lot of the time. And even when pain breaks

through, it prevents visits to the ER.



Did anyone watch Anderson Cooper 360 last night? He's had a series all week

about legalizing pot but last night's program had 2 brief interviews. One

with Melissa Etherege who used pot during her chemo treatment 5 years ago

and still uses it. She said it was wonderful for her cancer needs. The other

was an unknown Bipolar woman who used an unlimited amount of medical pot for

anxiety. She said that while the pot made her feel better for the first few

years, by the 3rd year of unlimited use, the pot made her anxiety and

depression worse and she became hooked on it. Something then was said rather

quickly - that pot worked well for physical ailments with symptoms like

nausea and pain but cauld cause extended neurobiological problems for people

with mental disorders. I was waiting for something to be mentioned about

cannabis toxicity but it never came up.



So there you go. My son really misses it but is staying off the pot, at

least for now. Thank you, Tina, for recommending Dr. Feldman. We had never

heard of him before and had no idea he shared the office at Cedars with Dr.

Fleisher at one time.



I'll give updates as times goes on.



Linda



[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

    My son has not had an eposide since October-8 months nor does he have any

nausea.  It completely went away went he stopped smoking on a daily basis.  He

still smokes occasionally- a little on the weekends but not to where it reaches

toxic levels.  He is healthy as can be.  For him it was definitely the pot.  We

are all so relieved since he is off to college in Aug. and could not go if he

was still having episodes.  

    As for them talking about pot on T.V.and relating it to CVS, I feel as if we

are more in the know from living it than anyone else.  When I first mention it

on this chatroom, most people thought I was crazy because pot helps them which I

am sure it does.  My niece is a nurse who went to a seminar on CVS and thought

she was crazy too.  I feel as if maybe my son didn't really have CVS but what

they call cannabanoid hypermesis(look it up online).  Who knows?  I'll I know is

that it was the answer for my son.

    I am so happy for you that your son has agreed to try it.  I pray that it

works for it is painful watching your child go through this and not being able

to help.  Keep me informed.

Mary









________________________________

From: Linda Piersma <lindapiersma1@...>

To: cyclicvomitingsyndrome@yahoogroups.com

Sent: Tuesday, June 16, 2009 5:25:02 PM

Subject: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman











Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is indeed a

very kind and very knowledgeable man. He had just returned from Chicago where he

met with 4 other CVS specialists. He mentioned that he also recently spoke to a

group of 145 gastro doctors and only a couple of them had even heard of cvs.

Sad, isn't it?



The long and short of our meeting - our son definitely has cvs, which was no

surprise to us. But it did give us a sense of relief to have him tell us that so

much of what he experiences is part of cvs. Dr. Feldman considers stress is a

major contributor to it. With our son having Tourettes syndrome, stress is part

of his make-up.



One issue Dr. Feldman brought up early on was pot use. When my son said he did

smoke at least once a day on a regular basis for anxiety as well as nausea, Dr.

Feldman suggested that the effects of pot could begin to cause the very symptoms

it's being taken to avoid. He asked my son if he would be willing to stop using

pot for 6 weeks to rule it out as a cause of his (at least) weekly abdominal

migraine episodes and prescribed klonopin wafers to use while he's weaning

himself off pot. My son agreed to abstain until he sees Dr. Feldman again in 6

weeks. He smoked the last of his pot last Tuesday and while he has had to take

zofran for nausea almost daily during the past week, he has not had any

abdominal pain or vomiting. I would say that's pretty remarkable for him. I

don't know if the nausea and anxiety lessen somewhat as time goes by with

continued abstinence. Hailey or Mary do either of you know?



Another thing that came up at the meeting was the use of suboxone as a pain

management medication. My son has been using it for a number of years now since

getting rebound from Stadol NS. Dr. Feldman was interested in how well it

worked. It works pretty well a lot of the time. And even when pain breaks

through, it prevents visits to the ER.



Did anyone watch Anderson Cooper 360 last night? He's had a series all week

about legalizing pot but last night's program had 2 brief interviews. One with

Melissa Etherege who used pot during her chemo treatment 5 years ago and still

uses it. She said it was wonderful for her cancer needs. The other was an

unknown Bipolar woman who used an unlimited amount of medical pot for anxiety.

She said that while the pot made her feel better for the first few years, by the

3rd year of unlimited use, the pot made her anxiety and depression worse and she

became hooked on it. Something then was said rather quickly - that pot worked

well for physical ailments with symptoms like nausea and pain but cauld cause

extended neurobiological problems for people with mental disorders. I was

waiting for something to be mentioned about cannabis toxicity but it never came

up.



So there you go. My son really misses it but is staying off the pot, at least

for now. Thank you, Tina, for recommending Dr. Feldman. We had never heard of

him before and had no idea he shared the office at Cedars with Dr. Fleisher at

one time.



I'll give updates as times goes on.



Linda



[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]

If it is indeed cannabanoid hypermesis in my son's case too, the next hurdle for

him will be getting back into society again.  He's been debilitated by these

episodes for the past 9 years. But we'll cross that bridge when we get to it,

right?





   ----- Original Message -----

   From: Mary Ward

   To: cyclicvomitingsyndrome@yahoogroups.com

   Sent: Wednesday, June 17, 2009 9:39 AM

   Subject: Re: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman











       My son has not had an eposide since October-8 months nor does he have any

nausea.  It completely went away went he stopped smoking on a daily basis.  He

still smokes occasionally- a little on the weekends but not to where it reaches

toxic levels.  He is healthy as can be.  For him it was definitely the pot.  We

are all so relieved since he is off to college in Aug. and could not go if he

was still having episodes.

       As for them talking about pot on T.V.and relating it to CVS, I feel as if

we are more in the know from living it than anyone else.  When I first mention

it on this chatroom, most people thought I was crazy because pot helps them

which I am sure it does.  My niece is a nurse who went to a seminar on CVS and

thought she was crazy too.  I feel as if maybe my son didn't really have CVS but

what they call cannabanoid hypermesis(look it up online).  Who knows?  I'll I

know is that it was the answer for my son.

       I am so happy for you that your son has agreed to try it.  I pray that it

works for it is painful watching your child go through this and not being able

to help.  Keep me informed.

   Mary



   ________________________________

   From: Linda Piersma <lindapiersma1@...>

   To: cyclicvomitingsyndrome@yahoogroups.com

   Sent: Tuesday, June 16, 2009 5:25:02 PM

   Subject: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman



   Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is indeed

a very kind and very knowledgeable man. He had just returned from Chicago where

he met with 4 other CVS specialists. He mentioned that he also recently spoke to

a group of 145 gastro doctors and only a couple of them had even heard of cvs.

Sad, isn't it?



   The long and short of our meeting - our son definitely has cvs, which was no

surprise to us. But it did give us a sense of relief to have him tell us that so

much of what he experiences is part of cvs. Dr. Feldman considers stress is a

major contributor to it. With our son having Tourettes syndrome, stress is part

of his make-up.



   One issue Dr. Feldman brought up early on was pot use. When my son said he did

smoke at least once a day on a regular basis for anxiety as well as nausea, Dr.

Feldman suggested that the effects of pot could begin to cause the very symptoms

it's being taken to avoid. He asked my son if he would be willing to stop using

pot for 6 weeks to rule it out as a cause of his (at least) weekly abdominal

migraine episodes and prescribed klonopin wafers to use while he's weaning

himself off pot. My son agreed to abstain until he sees Dr. Feldman again in 6

weeks. He smoked the last of his pot last Tuesday and while he has had to take

zofran for nausea almost daily during the past week, he has not had any

abdominal pain or vomiting. I would say that's pretty remarkable for him. I

don't know if the nausea and anxiety lessen somewhat as time goes by with

continued abstinence. Hailey or Mary do either of you know?



   Another thing that came up at the meeting was the use of suboxone as a pain

management medication. My son has been using it for a number of years now since

getting rebound from Stadol NS. Dr. Feldman was interested in how well it

worked. It works pretty well a lot of the time. And even when pain breaks

through, it prevents visits to the ER.



   Did anyone watch Anderson Cooper 360 last night? He's had a series all week

about legalizing pot but last night's program had 2 brief interviews. One with

Melissa Etherege who used pot during her chemo treatment 5 years ago and still

uses it. She said it was wonderful for her cancer needs. The other was an

unknown Bipolar woman who used an unlimited amount of medical pot for anxiety.

She said that while the pot made her feel better for the first few years, by the

3rd year of unlimited use, the pot made her anxiety and depression worse and she

became hooked on it. Something then was said rather quickly - that pot worked

well for physical ailments with symptoms like nausea and pain but cauld cause

extended neurobiological problems for people with mental disorders. I was

waiting for something to be mentioned about cannabis toxicity but it never came

up.



   So there you go. My son really misses it but is staying off the pot, at least

for now. Thank you, Tina, for recommending Dr. Feldman. We had never heard of

him before and had no idea he shared the office at Cedars with Dr. Fleisher at

one time.



   I'll give updates as times goes on.



   Linda



   [Non-text portions of this message have been removed]



   [Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

Make sure that he does completely quit for 6 weeks because that is how long it

takes to detox your body.  I hope it works.  Once he starts feeling better, I am

sure he will be ready to face the world again.  I'll keep my fingers crossed for

you and your son.  Mary









________________________________

From: Linda Piersma <lindapiersma1@...>

To: cyclicvomitingsyndrome@yahoogroups.com

Sent: Wednesday, June 17, 2009 5:39:44 PM

Subject: Re: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman











If it is indeed cannabanoid hypermesis in my son's case too, the next hurdle for

him will be getting back into society again. He's been debilitated by these

episodes for the past 9 years. But we'll cross that bridge when we get to it,

right?



----- Original Message -----

From: Mary Ward

To: cyclicvomitingsyndr ome@yahoogroups. com

Sent: Wednesday, June 17, 2009 9:39 AM

Subject: Re: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman



My son has not had an eposide since October-8 months nor does he have any

nausea. It completely went away went he stopped smoking on a daily basis. He

still smokes occasionally- a little on the weekends but not to where it reaches

toxic levels. He is healthy as can be. For him it was definitely the pot. We are

all so relieved since he is off to college in Aug. and could not go if he was

still having episodes.

As for them talking about pot on T.V.and relating it to CVS, I feel as if we are

more in the know from living it than anyone else. When I first mention it on

this chatroom, most people thought I was crazy because pot helps them which I am

sure it does. My niece is a nurse who went to a seminar on CVS and thought she

was crazy too. I feel as if maybe my son didn't really have CVS but what they

call cannabanoid hypermesis(look it up online). Who knows? I'll I know is that

it was the answer for my son.

I am so happy for you that your son has agreed to try it. I pray that it works

for it is painful watching your child go through this and not being able to

help. Keep me informed.

Mary



____________ _________ _________ __

From: Linda Piersma <lindapiersma1@ verizon.net>

To: cyclicvomitingsyndr ome@yahoogroups. com

Sent: Tuesday, June 16, 2009 5:25:02 PM

Subject: [Cyclic Vomiting Syndrome] Appt. with Dr. Feldman



Hi Mary, Tina and all. We met with Dr. Feldman a week ago Monday. He is indeed a

very kind and very knowledgeable man. He had just returned from Chicago where he

met with 4 other CVS specialists. He mentioned that he also recently spoke to a

group of 145 gastro doctors and only a couple of them had even heard of cvs.

Sad, isn't it?



The long and short of our meeting - our son definitely has cvs, which was no

surprise to us. But it did give us a sense of relief to have him tell us that so

much of what he experiences is part of cvs. Dr. Feldman considers stress is a

major contributor to it. With our son having Tourettes syndrome, stress is part

of his make-up.



One issue Dr. Feldman brought up early on was pot use. When my son said he did

smoke at least once a day on a regular basis for anxiety as well as nausea, Dr.

Feldman suggested that the effects of pot could begin to cause the very symptoms

it's being taken to avoid. He asked my son if he would be willing to stop using

pot for 6 weeks to rule it out as a cause of his (at least) weekly abdominal

migraine episodes and prescribed klonopin wafers to use while he's weaning

himself off pot. My son agreed to abstain until he sees Dr. Feldman again in 6

weeks. He smoked the last of his pot last Tuesday and while he has had to take

zofran for nausea almost daily during the past week, he has not had any

abdominal pain or vomiting. I would say that's pretty remarkable for him. I

don't know if the nausea and anxiety lessen somewhat as time goes by with

continued abstinence. Hailey or Mary do either of you know?



Another thing that came up at the meeting was the use of suboxone as a pain

management medication. My son has been using it for a number of years now since

getting rebound from Stadol NS. Dr. Feldman was interested in how well it

worked. It works pretty well a lot of the time. And even when pain breaks

through, it prevents visits to the ER.



Did anyone watch Anderson Cooper 360 last night? He's had a series all week

about legalizing pot but last night's program had 2 brief interviews. One with

Melissa Etherege who used pot during her chemo treatment 5 years ago and still

uses it. She said it was wonderful for her cancer needs. The other was an

unknown Bipolar woman who used an unlimited amount of medical pot for anxiety.

She said that while the pot made her feel better for the first few years, by the

3rd year of unlimited use, the pot made her anxiety and depression worse and she

became hooked on it. Something then was said rather quickly - that pot worked

well for physical ailments with symptoms like nausea and pain but cauld cause

extended neurobiological problems for people with mental disorders. I was

waiting for something to be mentioned about cannabis toxicity but it never came

up.



So there you go. My son really misses it but is staying off the pot, at least

for now. Thank you, Tina, for recommending Dr. Feldman. We had never heard of

him before and had no idea he shared the office at Cedars with Dr. Fleisher at

one time.



I'll give updates as times goes on.



Linda



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]















[Non-text portions of this message have been removed]